| | Joined: Oct 2013 Posts: 6 Member | OP  Member
Joined: Oct 2013 Posts: 6 | Hi,
I really don't know what to put on here that is not already on my signature.
I don't know why it took me so long to get here but I'm here now.
Blessings,
Lori
SCC stage 4 dx 04/12
Partial glossectomy (1/3) 04/12
Radical neck dissection 05/12
6 rounds Cisplatin 35 rad started 06/12
2nd clear PET 03/13
| | | | | Joined: Sep 2013 Posts: 94 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2013 Posts: 94 | Hi Lori, and welcome!
It looks like you have been through a lot. Hope you are feeling good now.
36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound
| | | | | Joined: Aug 2013 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2013 Posts: 54 | Welcome to the forum. Looks like you are doing well after a great deal of treatment. It's great to have you here. You will find lots of fellow survivors here and people just beginning the fight. Your experiences are very valuable and will help others. Jump in on some discussions! Looking forward to getting to know you.
48 yo female, quit smoking 4yrs ago, light drinker, Stage 2 SCC, Bx3, Dx 8/22/13, surgery 9/11/13. Partial glossectomy, bilateral neck dissection levels 1-4. Tongue reconstruction with flap from forearm. 87 Lymph nodes CLEAR. Tongue margins good at 1 cm. No further treatment planned. Monthly monitoring planned for upcoming year then periodic monitoring for next 4
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Lori. Glad you have found our site and posting. Great job on the signature!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Ditto on all the welcomes!
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi Lori and welcome...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Welcome, Lori!
I'm glad to see that you got clear results on your last scan, Congratulations!
Always nice to have another survivor around to give hope to those just starting out on this path.
Helping dispel the fear of the unknown that this journey entails takes many voices, each of which offers a unique perspective; and with many such perspectives, the newly diagnosed have a better chance of reading the one that resonates with them and provides that hope.
Did I say, Welcome?
Bart
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: Oct 2013 Posts: 6 Member | | OP Member
Joined: Oct 2013 Posts: 6 | Thank you all for your kind welcomes.
Blessings,
Lori
SCC stage 4 dx 04/12
Partial glossectomy (1/3) 04/12
Radical neck dissection 05/12
6 rounds Cisplatin 35 rad started 06/12
2nd clear PET 03/13
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Boy, do all of us know what it's like to be the new kid on the block. Perhaps one of the most admirable features of this family is the older kids (on the block) know what you're going through and what you are afraid of. They take you by the hand and gently nudge you in the right direction.
Welcome to the family, you already have a home here.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Oct 2013 Posts: 6 Member | | OP Member
Joined: Oct 2013 Posts: 6 | I don't know why it is so difficult for me to read anything here. I haven't been able to read anything but my own post and I start crying whenever I do.
Blessings,
Lori
SCC stage 4 dx 04/12
Partial glossectomy (1/3) 04/12
Radical neck dissection 05/12
6 rounds Cisplatin 35 rad started 06/12
2nd clear PET 03/13
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