| | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | When I first noticed this glitch happening, and because at times only the UBB code appears and when I thought I might be posting something longer that just a few sentences and risk losing the whole thing - - I just write my post on a word file, and with both windows open so I could see the OCF posting box plus my own word file, I just re-type into the posting box while copying my word file post (but not copy/paste). I type very fast so that's what works for me (in case it helps someone else).
PS: Hope I didn't do any hi-jacking here. . . . so back to Michael Douglas - an actor I greatly admire for his acting and especially for bringing awareness to Oral Cancer and to OCF!
Last edited by Anne-Marie; 10-13-2013 06:27 AM. Reason: Kudos to Michael Douglas!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2012 Posts: 14 Member | | Member
Joined: Dec 2012 Posts: 14 | Brian - Do you have any insight as to the treatment that Michael Douglas received? I see that your name was mentioned in the recent article. Did he have surgery or did he go right into Chemo/Rad treatments?
We asked our ENT if the surgery could be postponed until after the chemo/rad treatments so that impact to tongue could be reduced. She looked at us like we were crazy.
Thanks!
Joanna - caregiver (spouse) Init bio 11/12, gloss/neck dis 12/12, rad/cisplatin - 6 wks 2/13
"The most important thing is to keep the most important thing, the most important thing."
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | HI Jo
Michael Douglas did not undergo surgery. His treatment was either chemoradiation or radiation. My recollection is that it was chemoradiation.
The reason your ENT gave you a funny look is probably because she failed to recognise the misunderstanding (her problem - not yours).
So just to clarify something that you may not have been told: Radiation causes permanent damage to the area being irradiated. In particular, slowed healing is of concern so surgery becomes a little bit more risky and complicated (and painful). Surgery is often performed first to avoid potential issues.
So going back to your question of the ENT... what this means is that if surgery had been postponed until AFTER the radiation, it might actually have had a worse impact than doing it the other way round.
Does this make sense?
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Each of us has a different disease presentation and what one person had vs another is not an apples and apples kind of thing. So some people have radiation and chemo and no surgery, some have surgery only, some have all three. It is so much a function of how advanced your disease is, and where it is located, and how invasive it has become. So the answer is Douglas had no surgery, but that answer really doesn't mean anything to anyone else but him.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Just to add one to Brian's list of reasons why all of our Tx's can be different.... HPV status.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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