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| Joined: Sep 2013 Posts: 5 "OCF Down Under" Member | "OCF Down Under" Member Joined: Sep 2013 Posts: 5 | Hey Shawn. Just new to the site and since you vented below, I do hope you are feeling ready for the next battle, I went to 3 specialist and numerous GP visits before they stopped treating me for swimmers ear and sore throat , one guy was convinced I has sinus problems. After 5 months and knowing something was not right "constant pain, not eating, living on pain killers. I found a specialist who listened actually looked,and who said to me mate I think you may have a problem here, 2 weeks later surgery and the the following week more surgery to getting all. Now radiation treatment which scares me, I chose not to have chemo and asked that they remove 1/2 my tongue. My wife when she had breast cancer went the other way keep her breast did chemo / radiation and is now powering along 3 years later. Hope all gets better after the storm mate. Pedro.
| | | | Joined: Aug 2013 Posts: 144 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Aug 2013 Posts: 144 | Welcome to the site Pedro, I hope that you feel better after radiation. which for me was the easiest part of treatment thus far. But we are all different animals and will have different amounts of radiation and or drugs. for me I think radiation was easiest because they could not give me the usual dose due to my HIV+ status.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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