| | Joined: Jun 2013 Posts: 49 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2013 Posts: 49 | Richard is taking most of his nutrition by mouth. Oatmeal, Pizza, Pasta, Meatloaf, (everything we eat, he eats) and a daily shot of Noni Juice (which may or may not have something to do with his rapid recovery).
Swallowing function is good with some saliva. Taste is slowly coming back. Although most food still tastes like "delicious cardboard".
He is still 20 pounds under his pre-cancer weight, lanky for his 6'3" frame, but a stud-muffin in my eyes, no matter what!
The goal, no more tube feeding by the end of this month. The tube will remain in place till November on the Oncologist's recommendation, that is when he goes through his first PET Scan.
He is soldiering on and eating to live (and to surf, the PEG gets in the way of his surfing style). He is taking the salt water cure (going to the beach) weekly with our granddaughter to swim/surf. I believe it was ChristineB (thank you) who recommended Glad Wrap to hold the tube in place when swimming. Richard is quite the sight at the beach, a real fashion statement for HNT Survivors, wrapped up in plastic, and he could care less, as long as he can get in the water.
He is a landscaper and back to working his business (physically), more than full time.
He is my hero. As are ALL of you. Keep fighting, do not give up hope.
Will check in intermittently and report progress. This group is a wealth of information and encouragement.
Aloha,
Barbara (CG of Richard)
Last edited by bjlral; 09-24-2013 11:52 AM.
65 yr old male in great health other than C. 5/1/13 lump discovered, 5/15 Biopsy, 5/29 PET/CAT, Diag: SCC HPV+ rt tonsil, 1 node, Stage III T1-2 N1, 6/10 PEG, 06/17 Chemo, 6/24 Radiation, 7/6 100% PEG, 8/14 Done with treatment, 11/6 follow-up PET, 11/8 NED, 11/13 PEG removed!
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 |
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | So awesome! Jealous on the surfing!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wow, what a recovery! Surfing so soon! Amazing  Yes, I did the cling wrap which I could hide under my swimming suit. I just crinkled every move I made which drew some stares. If people want to stare, let them look! Richard has earned the right to surf with his plastic wrap and tube if he wants. So glad he was able to benefit from my suggestion. I love reading great news like yours! It helps others to see there really is a good life out there after going thru so much. Thanks for posting the update
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Stud Muffin made me smile. He's a lucky man to have you.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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