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Joined: Jun 2008
Posts: 475
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Jun 2008
Posts: 475
Check out our upcoming fall events! If you live nearby please come and support these events, it only takes a few hours of your day and you would be representing OCF and this cause of awareness...we need you to give oral cancer a voice!

http://donate.oralcancer.org/index.cfm?fuseaction=donorDrive.home


Thank you!

Susan

(Oh and to plug my own walk, calling anyone living in the tri-state area (NJ, NY, PA) come to the David Nasto Memorial Walk 9/21 at Perona Farms! )


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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Sunday, Sept 8th will be the 2nd OCF Northern IL (Chicago) walk.

So far there are well over 500 registered for the walk. There are several OCF members who live in this area who will be coming out to support this event. I know 5 friends in this area who will be attending. If you will be attending please let me know so we can make plans to meet. I will be the featured speaker at the Chicago walk.

Its very important for survivors and caregivers to attend these functions. It helps to educate the dental/medical community of what OC survivors go thru. It shows the general public the importance of early detection and allows them to get a proper OC screening.

Please take some time out of your busy schedule to attend an event in your area. You can even host your own walk to help spread awareness of this horrible disease. For more info PM me or Susan Lauria.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
I wanted to let everyone know the Chicago walk was a huge success!!! The weather was perfect, but of course it was windy. There was a nice turn out of survivors.

The volunteers put in so much time and energy to pull off this event. If anyone is anywhere near any of the upcoming fall walk, PLEASE make it a point to stop out and join in. The event is free to oral cancer survivors and you will even get a tshirt if you preregister before their cut off date. There are several walks coming up Seattle, Andover, NJ, Bethlehem PA, Houston, Boston, and Ohio. Please check the link in Susan's post to find a walk near you.

I will be speaking at the Seattle walk next Saturday. Then the following Saturday, I will be attending Susan Lauria's NJ walk. Please join me if you live near these locations.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

Moderated by  Brian Hill 

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