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#170268 09-01-2013 02:03 PM
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1TOMMY Offline OP
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Hello,
I am 8 months post treatment, question, has anyone that lost 50 lbs. like me returned to your original weight somehow? I feel as i am too skinny and would like to bulk up some more. any replies would be grateful!!

Last edited by 1TOMMY; 09-01-2013 02:05 PM.

Tom
1TOMMY #170271 09-01-2013 02:16 PM
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At 8 months post treatment, your body has not yet completely recovered. It can be a full 2 years before your body is back to normal. Even if you would take in 5000 calories every single day for 3 months straight, I doubt you would gain anything right now. Your body is still trying to rebuild itself from what it has been thru. Try your very best to take in 2500 calories every day and try to make your diet the healthiest you can.

I lost 65 pounds during my first battle with OC. It took me 5 years before I began to gain weight again.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
1TOMMY #170272 09-01-2013 02:24 PM
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I lost a total of 65lbs from last Fall, prior to my diagnosis until post Tx. I've maintained my current weight even though I've increased the amount I'm taking in.

I attribute this to my body healing and needing additional calories. My team concurs.

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
1TOMMY #170274 09-01-2013 02:53 PM
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I lost 75 lbs through treatment and was consuming 4,000 cal/day for about 7 months. The 8th month I gained 50 lbs back.

I ate everything and anything and the doctor told me if I didn't gain weight he felt my body would not recover. A few (short) months later he asked if I was still consuming mass amounts. I said yes...he said I could back down any time since I was now "huge" in his words. The weight stayed the same for 4 1/2 years after that.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
1TOMMY #170286 09-01-2013 05:26 PM
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I lost 110 pounds just from chemo. I was down to 130lbs from 245lbs in a few weeks from cancer cachexia, also known as wasting syndrome, and other illnesses. I'm now between 195-200lbs, but that took almost 4 years to gain back, although I was in several treatments between. My highest weight ever was 275lbs at 5'10", so I'm at the point if I want to bulk up I can, and started exercising with weights recently, and I get big just looking at weights lol, and only go occasionally. I'm comfortable at this weight, and should not gain more due to kidney disease, again from chemo. Muscle, fat has memory, so you will gain back the weight to your highest level faster than someone who wasn't, and used to do it many times since I was 16, losing weight, gaining weight at will, sometimes losing 20, 30 a week, and up to 100lbs in a year, and back up again, but losing gets was harder and harder if you want that one day. It's more difficult to gain after Tx with the body fight cancer, malabsorbtion in the digestive track and stomach, metabolism changes, and altered diet.

There are ways to increase your appetite, and weight with prescription drugs, OTC vitamins, exercise and diet. Even sight, taste, smelling foods, food combination, colors can increase your appetite.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






1TOMMY #170496 09-05-2013 10:37 AM
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I lost 40 pounds from treatment. 195 to 155. I did get back to about 160. I eat and drink all the time and jut can not gain anymore weight. I o exercise quite a bit. I do count calories and try to reach about 3500 per day. 160 is pretty trim. I am6'1"

Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




1TOMMY #170561 09-06-2013 05:59 AM
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Steve,

Glad to hear from you. I am 5'7" and now 65 (big ugh). Pre Tx I weighed 160 and lost 30 to Tx and as you know an avid cyclist. I couldn't gain a pound my 1st year post Tx but I really didn't mind because I found riding hills was easier. Flash forward 7 years I still exercise 6 to 7 days a week and am currently gearing up for my next Century in Nov and I weigh 136 and I personally feel that I am in better shape at 65 than I was pre Tx at 58.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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