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#170146 08-30-2013 10:59 AM
Joined: Jun 2013
Posts: 262
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Joined: Jun 2013
Posts: 262
"Do not pray for easy lives. Pray to be stronger men."

-- JFK

What quotes have inspired you on your HCN journey?


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
Mamacita #170153 08-30-2013 03:03 PM
Joined: Jul 2012
Posts: 3,267
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
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None really, all I can think of, "Do or Die" "What doesn't kill you, makes you stronger" "It was the best of times, it was the worst of times."


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Mamacita #170187 08-31-2013 02:07 AM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Don't borrow sorrow from tomorrow.


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Mamacita #170190 08-31-2013 06:23 AM
Joined: May 2013
Posts: 134
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: May 2013
Posts: 134
The LORD is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge, my shield and the horn of my salvation, my stronghold.


Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
Mamacita #170191 08-31-2013 07:25 AM
Joined: Mar 2013
Posts: 421
Likes: 1
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Joined: Mar 2013
Posts: 421
Likes: 1
The two that have always inspired me:

"Life is 10% what happens to us, 90% how we handle it" Charles Swindoll on Attitude

"Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, Love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
Mamacita #170217 08-31-2013 03:29 PM
Joined: Sep 2012
Posts: 381
"OCF Canuck"
Platinum Member (300+ posts)
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"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
"Kick ass and take names"

-my best friend the day before my surgery


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
Mamacita #170498 09-05-2013 11:09 AM
Joined: Jun 2013
Posts: 262
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Jun 2013
Posts: 262
Endurance is not just the ability to bear a hard thing, but to turn it into glory.
-- William Barclay


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
Mamacita #170524 09-05-2013 04:57 PM
Joined: May 2013
Posts: 185
Likes: 3
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: May 2013
Posts: 185
Likes: 3
Be more than just a racer today. Be a finisher. - John Maxwell


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
Mamacita #170551 09-06-2013 03:58 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
"Fake it 'til You Make it"
-Anonymous, I think


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Mamacita #170559 09-06-2013 05:51 AM
Joined: Aug 2013
Posts: 31
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Aug 2013
Posts: 31
" Fall seven times, stand up eight"

"Unless someone like you cares a whole awful lot, nothing is going to get better, It's not." - The Lorax, Dr. Seuss


DX with MEC salivary gland 8/20/2013 age 27 F 9 weeks pregnant
Jessica, Mother to a 4 and 9 year old
11/18/2013 surgery to removed tumor, including bilateral jaw muscle. 2nd Trimester.
12/2/2013 results came back for clear margins
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