| | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey there... unfortunately this is very normal. At this point she may need some pain meds. It's best if she takes the water or fluids lukewarm that way it doesn't startle her already sensitive mouth. Definitely the baking soda rinses will help not with pain but with healing (she can also flatten club soda and actually drink it... it has healing properties - much like the baking soda mixture) I would eat and drink what I could then rinse and sleep - a pain med prior to eating (usually 15 minutes - 30 before hand) then maybe magic mouthwash and chug or eat what she can.
best of luck... it is not fun. I am assuming she is at week three almost?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | She is on Cisplatin. I will try to do a signature....thanks.
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | Thanks Cheryl for the great info. Yes she started first day of Chemo September 12 and also the radiation same day. her next chemo is September 3 and she had to do radiation for I think 6 weeks. I'm going to try and get the signature done up....She is suppose to do 3 Chemo treatments.
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | What's the best way to take pills if you can't swallow? I guess just crush them up and put them in a liquid?
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | You need to be very careful of the type of pills you crush and ingest. Some are time release so you need to keep those intact; otherwise they are no longer time-release.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | Oh good point. I never thought of that. She's had 14 radiation treatments and the lump on her neck is getting bigger! Shouldn't it be getting smaller??
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | Did anyone have hair loss from the chemo cisplatin? My sister is losing her hair already after one chemo treatment and she was told hair loss is rare on this type of chemo...
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Mar 2013 Posts: 421 Likes: 1 | No hair loss from Cisplatin for me. It is a rare one.
"T"
57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Losing hair is normal from radiation not the chemo - I lost it all below my ears across the back of my head and it thinned on my left side up to the crown - that side not only got rads on my neck but my tongue. It grew back - I finished in may & by August I had enough hair to put extensions in.  yes be careful with the pills. If it is going into the tube ask if its available in liquid form. Hugs...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | I lost all my hair during chemo. Not sure if it was the taxotere, cisplatin, or 5FU but one of them sure made it all fall out.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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