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Joined: Aug 2013
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I had a lump in the back of my mouth, upper right side behind molar along cheek. They performed a biopsy last Friday and said to schedule an appointment for 2 weeks. They just called today and told me to call and move up my appointment to Tuesday instead of next Friday. Why would they do this? It just made my nerves about a million times worse. I am 27, a smoker except during pregnancies, have a 4 year old, 9 year old, and I am currently 8 weeks pregnant. I feel like they should be able to tell you something over the phone, that way we can prepared to listen at the follow up if it's bad.

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Not much you can do till Tuesday. Try and relax if possible. Keep busy and preoccupied. They don't usually give any news, good or bad, on the phone. It may be nothing. I hope all goes well Tuesday.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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HI,

Welcome to OCF. There are many folks who have experienced your concerns. It could be something as benign as the doctor received an invitation to play on an exclusive golf course that day so is rescheduling appointments to clear his calendar.

The golden rule around here is it is NOT cancer until so stated in a the test results report.

I know next Tuesday can seem like an eternity when being so anxious but do your very best to take the position above - it is NOT cancer unless so STATED.

best to you, don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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Many physicians will not give results over the phone. Its just their policy so dont let that make you nervous. It usually take about a week for the results to come in so Im surprised they initially wanted you to wait 2 weeks to return.

Speaking as a former smoker who lost her jaw to OC, PLEASE (no matter what the results of the biopsy are) quit smoking permanently. Its NOT worth the risk to you and your family!

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Thank you guys, and yes I know I have to quit smoking, luckily it's something I actually want to do. I called to schedule my new appointment and of course asked if I could have some sort of info over the phone and of course the doctor said no, he Needs me to come in. I think the issue is I have panic and anxiety disorder and this waiting is just making me nuts, and I can't be on meds anymore due to pregnancy. OY, it's all just viscous cycle. I appreciate your thoughts, and will just wait, but I really would rather get a phone call Tuesday, I really don't like the idea of having news if bad handed to me in person in a doctors office.


DX with MEC salivary gland 8/20/2013 age 27 F 9 weeks pregnant
Jessica, Mother to a 4 and 9 year old
11/18/2013 surgery to removed tumor, including bilateral jaw muscle. 2nd Trimester.
12/2/2013 results came back for clear margins
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Hi Angelsrock,

As has been mentioned, it's NOT cancer until they say it's cancer! I know it's easier said than done but try to relax and stay away from Dr.Google! Could be any number of reasons they changed the appointment.

Now, regardless of the result... smoking! C'mon now! You have to stop! I was a smoker (cigarettes, pipe and cigar) for 35 years. I quit last year prior to my diagnosis. Do I miss it? Absolutely! There are times even now where I crave a good stogie but the thought of treatment and what I went through quickly quells the urge.

I used the electronic cigarette to quit. You can step down in the amount of nicotine until you reach zero. It's a vapor that delivers the nicotine and it "feels" like you're smoking. Even my docs said it was better than inhaling the 4000 chemicals that are in tobacco smoke. For your health and your children, please quit!

Positive thoughts and prayers,

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
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Hi there - is there any way you can move it to tomorrow? This would eliminate the stress. I don't want to freak you out, they must want to discuss the results with you. It isn't cancer until they say it is, this is very true and it could be something innocuous or inconclusive that may require surgery to remove, but I would try to get in before Tuesday - hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Could be due to the doctors scheduling, and nothing more, and has happened to me often, but luckily not when I had a biopsy. If you had the biopsy in the hospital, I usually go to the pathologist office, Otolaryngology Dept or medical records to get my own copy of the pathology, surgery or scan report, and read it myself since I dont like waiting, but usually see the Dr. that day or soon after. My private oncologist is more difficult, and can't get a copy from until after I've seen her nor get it over the phone. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
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08/12 RND Pec Flap IORT 12 Gy
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10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
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02/19 Finally Cancer Free Took 10 yrs






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If you are that nervous about it, call tomorrow and if not call again on Monday to ask if they have any cancelled appointments they could squeeze you into. If not then you will know the next day, Tuesday.

Waiting is the worst!

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2006
Posts: 2,671
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Angel -Scheduling could be all it is with getting appointments (as Paul mentioned). We got my son's first appointment with the ENT moved up from 2 weeks away to the next business day. They can do that. They can move other appointments around. As for "in-office" appointments, the advantage there is that whatever the results are, there are human beings there to help with some positive suggestions as to how to proceed and what comes next. If you bring someone with you, and it's positive news, you can celebrate together and if it's not so positive, you have hugs to go along with the plans for what comes next. In my son's case, when we got the news, my daughter was there, and the ENT plus three interns and something that helped me so much was a comment made by the female intern just as everyone was leaving. I think she saw how worried I was and assured me that Dr. C was very aggressive in his treatment and I knew by the look on her face and the tone of her voice that my son had a very good chance of being ok. You don't get that over the phone. They probably just want to tell you to quit smoking. And you can do that!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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