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gmcraft #171837 10-01-2013 04:50 AM
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"OCF Canuck"
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"OCF Canuck"
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Posts: 381
Gloria, I am so sorry that there isn't better news. I'm hoping John can do the trial, and I'm thinking of you both.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
gmcraft #171870 10-01-2013 09:59 AM
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"OCF Canuck"
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"OCF Canuck"
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Very much hoping the can do the trial... and most importantly that it is effective. hugs to you all.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
gmcraft #171931 10-02-2013 06:23 AM
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gmcraft Offline OP
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Tina, Kathy and Cheryl,

Thanks for your support. It means so much to know that you care. I am now looking into what questions I will need to ask the doctor when the clinical trial comes up, as well as issues that we may need to seriously consider before committing. At the end of the day, it has to be something that John wants and not something he gets pushed into.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
gmcraft #171935 10-02-2013 06:59 AM
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"OCF Canuck"
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Absolutely. Ask if there are any specifics about the trial you need to know. As in if the trial doesn't work, is there a wait time to try another treatment (assuming one is available) My friend unfortunately had this come up when she was battling peritoneal cancer. Her trial chemo was combined with taxol. There was another chemo available to her after the taxol and trial chemo (though her chances at this point were slim) but because they had to wait until the trial was out of her system, and that was a three week wait followed by an uneccesary 2 weeks because she changed hospitals, and they put her off because the dr. was away on vacation and the unit was on slow down. That made it 5 weeks, and by that time she was so sick and had lost so much weight that they refused to treat her and moved her into palliative.

hugs and best of luck.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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