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#168984 - 08/08/13 03:55 PM Partial glossectomy yesterday  
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didier Offline
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didier  Offline
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Chicago
The new tumor on my mom's tongue was removed yesterday, but they were able to salvage part of the right side, so perhaps with the flap, rehab and rehab she'll have some ability to speak. Waiting on path report for tumor size and neck dissection results, hopefully there won't be any further surprises.

12 hour procedure made for a long day, I don't know how these docs have the stamina. Although I find the procedure interesting, the resident's blow-by-blow description of the operation almost made me lose my lunch and pass out. Glad it's over, now we can hopefully focus on a successful recovery and rehab upon release from the hospital in about ten days.


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
#168989 - 08/08/13 08:26 PM Re: Partial glossectomy yesterday [Re: didier]  
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Cheryld Offline
"OCF Canuck"
Cheryld  Offline
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Toronto canada
Your mom will be able to speak - I think I've mentioned it before we have people here who've had total glossectomies and they can speak - she will need a speech therapist and she may have trouble being understood but e neutrally ash she heals she should be okay. smile hugs and fingers crossed on the biopsy results smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#168998 - 08/08/13 08:56 PM Re: Partial glossectomy yesterday [Re: didier]  
Joined: Jun 2013
Posts: 262
Mamacita Offline
Gold Member (200+ posts)
Mamacita  Offline
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Joined: Jun 2013
Posts: 262
Wisconsin
Hi Didier, I'm so glad your mom's through surgery. I hope her recovery is smooth --


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
#169282 - 08/15/13 02:35 AM Re: Partial glossectomy yesterday [Re: didier]  
Joined: Jul 2003
Posts: 235
didier Offline
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didier  Offline
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Chicago
Thanks everyone for the kind words, she's doing remarkably well. She was discharged from ICU after three days and transferred to a regular hospital room last Saturday. Once the swelling subsides and, with some luck, the trach and IV lines will be removed within several days, she'll transfer to an acute rehab center. Communication has been with a write and wipe board and a borrowed iPad that has a pretty cool communication/speaking app. I'm blown away by her positive attitude, I really am. I so hope this works out. I don't believe she's a candidate for any more radiation given her previous tx and chemo was really tough on her the last time around. Peripheral neuropathy developed and all sorts of other side effects were tough to handle. The docs did indicate, however, that some chemo might be necessary and they didn't exactly rule out radiation if we run into problems down the road. Crap. I don't know if that's a good idea given that she has ONJ too. I have to stop speculating and worrying, I almost drove myself crazy 10 years ago doing that. Thank you for allowing me a place to vent.


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
#169283 - 08/15/13 02:56 AM Re: Partial glossectomy yesterday [Re: didier]  
Joined: Dec 2003
Posts: 2,597
Uptown Offline
Patient Advocate (old timer, 2000 posts)
Uptown  Offline
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Posts: 2,597
Dallas
Dave,

I missed your posts earlier about your mother. I am so sorry to hear the news. You are a jewel and she is so fortunate to have you by her side. It has been such a rough road for so long for you. I'm encouraged the surgery seemed to go well. I'm hoping rehab goes well too.

Ed


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Diagnosis Post Radiation Lower Motor Neuron Syndrome 3/08.
Diagnosis Cervical Spinal Stenosis 01/11
Diagnosis Cervical Myelitis 09/12
Diagnosis Thoracic Paraplegia 10/12
Diagnosis Dysautonomia 11/12
Hospice care 09/12, off 01/13.
Diagnosis PLS 02/13
Diagnosis COPD 01/14
Diagnosis Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
Living life LARGE with no quit in this guy!
#169338 - 08/15/13 08:00 PM Re: Partial glossectomy yesterday [Re: didier]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
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Patient Advocate (old timer, 2000 posts)

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Toronto canada
So glad she is doing okay.. Hugs to you!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#169634 - 08/21/13 03:09 PM Re: Partial glossectomy yesterday [Re: didier]  
Joined: Jul 2003
Posts: 235
didier Offline
Gold Member (200+ posts)
didier  Offline
Gold Member (200+ posts)

Joined: Jul 2003
Posts: 235
Chicago
It's been two weeks with a few shots of optimism followed by a jab to the stomach. The path report showed no node involvement and negative margins, but some perineural invasion. That concerns me. The tumor board feels that observation is prudent given the overall situation.

Rehab continues to go well. Mom's using a walker during physical therapy, and the speech pathologist has her saying a few phrases while covering the trach. That brought a tear to my eye, it was an amazing moment. However, she wrote a note on her Write and Wipe board telling me that she was weak and didn't want any additional tx if things get worse. I don't know where this journey is headed.

Last edited by didier; 08/21/13 07:06 PM.

Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
#169641 - 08/21/13 04:35 PM Re: Partial glossectomy yesterday [Re: didier]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
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EricS  Offline
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Posts: 1,844
Idaho
didier,

As none of us really know where our journey is heading, you are not alone my friend.

PNI should raise some concerns, and is a scary thing...I know I've been there. All we can do is get the best medical advice available to us, and hope for the best outcome. The only things we can control on this crazy journey is our attitude, and nutrition. The rest is up to how the body responds to treatment and the knowledge and practice of our medical team.

Keep to hope, and take it one step at a time.

E


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#169674 - 08/22/13 04:29 AM Re: Partial glossectomy yesterday [Re: didier]  
Joined: Sep 2012
Posts: 379
tina77 Offline
"OCF Canuck"
tina77  Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 379
Edmonton, Alberta, Canada
Didier:

Your mom's pathology was the same as mine - I also had perineural involvement but no nodes and clear margins - they gave me the option of radiation because I was in the middle of where they would recommend or not. I, for my own reasons, choose no rads. So far so good. I hope the same for your mom.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
#169714 - 08/23/13 12:00 AM Re: Partial glossectomy yesterday [Re: tina77]  
Joined: Jul 2003
Posts: 235
didier Offline
Gold Member (200+ posts)
didier  Offline
Gold Member (200+ posts)

Joined: Jul 2003
Posts: 235
Chicago
Thanks again, everyone. We're hopefully going to inch along and take each day as it comes with as much joy and opportunity as we're able to squeeze out. My best wishes to you and your families.


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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