Previous Thread
Next Thread
Print Thread
Page 8 of 9 1 2 3 4 5 6 7 8 9
Deejer47 #171134 09-16-2013 04:06 PM
Joined: May 2013
Posts: 185
Likes: 3
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: May 2013
Posts: 185
Likes: 3
Good news David stay the course and fight the fight.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
Deejer47 #171137 09-16-2013 05:01 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
David,

Sounds like progress! You can also check with ostomy companies and get some "samples" for the future. When I was taking care of my other for 9 months they were very generous and made sure we had adequate supplies. Just a thought.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Deejer47 #171152 09-16-2013 07:35 PM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Stay strong!!! smile and more power to Linda.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Deejer47 #171162 09-17-2013 02:30 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
So glad for the quiet weekend and progress you all have had. Good for you and Michael and Linda!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Deejer47 #172396 10-11-2013 04:09 PM
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
ahere I am again. Been a while and sorry about that. Linda had chemo #3 today, delayed again for a week as she was in the hospital last week when it was scheduled. I had taken her to the e.r. last Monday sept 30, because she was very confused and dizzy. They felt she was having a reaction to the antibiotic Reglan, and changed her script and released her. Then on weds she really went in to a tail spin, she was dizzy, coul barely get off the bed and was beligerant and delirious. Called an ambulance to take her back to e.r. That was about 4 pm. they kept her in the e.r. til 4 am thurs, during which time she was hallucinating and just completely freaking out. She couldn't keep still and kept wanting to get up and then lie right back down. Turned out that her magnesium level was extremely low and that was causing her problem. She was admitted and stayed thur and fri nights. She was supposed to have had chemo on thurs. Rescheduled chemo for this wed but her blood count was down to 6.7 (11-14 is normal) so they gave her 2 units of blood on wed and 1 unit yesterday. So finally got chemo today. We don't know what caused the low blood count. I know that years ago when she had ulcers it got almost that low, but there's no sign of ulcers so we just don't know. Anyway, she has felt much better since receiving blood. Not sure how she manages the strength to continue fighting through all of this. Call her Wonder Woman.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #172398 10-11-2013 05:17 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
David, how horrible! The medication reglan (Im pretty sure) is for nausea. As always wishing both you and Linda all the best with everything.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Deejer47 #172399 10-11-2013 05:56 PM
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Sorry, you're right Christine. She's been on so many meds I can't keep them straight. She also had a bad reaction to cipro, which is an antibiotic.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #172459 10-13-2013 11:48 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
I'm sorry to hear of the continued troubles, David. RBC last approximately 90-120 days, and die off continuously, and are continuously replaced, but chemo and radiation can compromise bone marrow production where RBC are made, so fewer are made available to pick up oxygen in the the lungs, Hemaglobin, in addition too, RBC being killed off by the body or by treatment faster than they can be replaced. They may go down again in several months, sooner, and process continues, and have had a number of transfusions, epogen, shots myself from treatment, and from a metabolic disorder to raise my Hemaglobin. Mine is never higher than 10.5, usually 9.5 or less, but anything under 7 is dangerously low. But even at 8, 9, if the person is in respiratory distress it can be life threatening, and may be give transfusions at that level or when the oncologist orders because anemia can cause one hypoxia to be chemo and radio resistant.

Reglan is for nause vomiting, GERD, but it's not a antibiotic.

Good luck.



10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Deejer47 #172462 10-13-2013 12:33 PM
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Thanks Paul. That's more info than the infusion staff could give us. I know that Enloe is one of the top ranked hospitals but sometimes they do disappoint.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #172469 10-13-2013 01:10 PM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
I'm glad it helped, bur may not be the sole reason, of course, other medication, factors may be involved. I was hospitalized 187 days, had blood tests several times a day, and always wondered if they could take less? I found out, not practiced yet, they can use an infant syringe to take less blood to those with low blood counts.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Page 8 of 9 1 2 3 4 5 6 7 8 9

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5