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#166468 06-12-2013 11:00 AM
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We met with Linda's oncologist yesterday (Michael and I). It was a much better meeting than I had feared. 3 weeks ago the word was that Linda would probably not survive thye surgery because her blood pressure was too low. She survived that. A couple of days later it was "She won't be able to get back enough strength to go through chemo". She has surprised everyone with the rapid rate of recovery. Then it was "She will need surgery to get rid of as much cancer as possible, but even as well as she's doing, surgery is out of the question". Now, r\the onc says that in Europe they have reversed things and are doing surgery after chemo, instead of before, so if she deals with the chemo and continues gaining strength, that is a possibility. Bottom line, we've gone from talk of when to take her off life support and make her last weeks as comfy as possible to cautious optimism. As hard as she is fighting, she has to deserve some breaks. Thanks to all for continued prayers and support.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #166472 06-12-2013 02:13 PM
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WOW, David. Seems like there's a light at the end of the tunnel. Hope is what we survive by, and it sure sounds like you all have it and there is a future. I guess, one day at a time, and prayers. Linda just seems like the type person that will never, ever just give up, so rejoice in this latest news. Like I said before, WOW. Amazing Grace.

Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Deejer47 #166480 06-12-2013 05:40 PM
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Linda is such a fighter! Im hoping she continues to do well. Hang in there David! Im sure this is very hard on you so please dont forget to take time to be kind to yourself thru all this. Wishing you both all the very best!

Always in your corner!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Deejer47 #166496 06-13-2013 12:24 AM
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My niece is just coming back to Canada after 9 years in England. She was diagnosed with either inflammatory (bad) breast cancer, or locally advanced breast cancer. The europeans definitely do think chemo first is the way to go. She had two rounds of chemo before moving to Canada and Canada is staying with the same game plan. Once the chemo is done, they will do surgery, but the idea is that the surgery is then FAR less extreme and easier to tolerate. All good news for you!! Made my day.

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Deejer47 #166522 06-13-2013 07:25 AM
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Awesome! Hugs to you both - tell her to keep fighting. smile and I'll say some prayers!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Deejer47 #166555 06-13-2013 06:52 PM
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Big hugs to you, David. I'm sorry I haven't been able to follow closely enough. Just know that you and Linda are always in my thoughts. We all want a happy ending, that's for sure. The both of you deserve nothing less.

xoxo,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #166713 06-16-2013 12:28 PM
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David:

Just wanted to let you know I am thinking of you and wish you a very Happy Father's Day.


Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Deejer47 #167130 06-26-2013 10:20 AM
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After steady improvement, Linda has had a couple of set backs. 1st, the dr. took her off of dilaudin for pain and switched her to methadone, which lasts longer. Her blood pressure dropped drastically and she was not digesting her food.. Took her off methadone and on Norco. Liver enzymes became elevated, though bp did improve. Off Norco and back to dilaudin. This morning she has a fever of 101 and we are waiting for blood test and x-ray results. This is really scary. I'm in way over my head and can't get straight answers from anyone. Michael is beside himself and ready to punch someone. I can't blame him. And we haven't even started on the cancer yet.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #167137 06-26-2013 01:06 PM
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So sorry that this is happening. It is maddening that doctors change things to make them worse. My thoughts are with you and your family at this trying time.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Deejer47 #167140 06-26-2013 02:44 PM
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So sorry to hear this latest news, David. Things looked like they were improving there for a while and now this. It's so unfair. Not getting straight answers from anyone can really stress you and Michael and I pray things improve. That's about all I can do, and will keep praying. So sorry.

Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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