| | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | I just read online Jim Kelly who was the Quaterback of the Buffalo Bills back in my day has Upper Jaw Bone Cancer. I watched him play all his years, die hard Buffalo Bills Fan 30 years, season ticket holder. I sent him an e-mail hopefully whoever reads it sends him my message get to a Cancer Treatment Center. I also sent this forum to him.
Prayers for him and his family.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sad story for anyone! What I read it sounded like Jim's cancer was his upper jaw. I hope he is one of the lucky ones and has an easy time of the whole battle. Hope he doesnt end up disfigured!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2012 Posts: 151 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2012 Posts: 151 | http://www.wivb.com/dpp/health/more-on-type-of-cancer-jim-kelly-hasThis caught my attention because my 26 year old son was a fan of Jim Kelly growing up since he was 3. His grandma had bought a Jim Kelly jersey at a garage sale that he wore as a night shirt and that started the connection.
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | I sit here in disbelief Jim Kelly didn't go to a Cancer Treatment Center he went to ECMC read it in the Buffalo paper this morning. Buffalo, NY has Roswell Cancer Center I wonder what the reason is.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Nov 2012 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2012 Posts: 58 | I don't understand 2 things. I read a different article that stated he had surgery in December and they had to remove his front teeth. That article and his press conference (a few days before the most recent surgery) did not say that he had cancer in December. I don't think that they stated the medical reason for that surgery. I am not a doctor but I would think that the jawbone cancer 6 months later would have to be related to the previous surgery.
I was curious about why he would go to ECMC instead of Roswell. I think that I looked on the website and ECMC lists itself as specializing in Oral Cancer. I am a skeptic about any hospital or physician claims so that may be a claim that isn't accurate at all. All of you know much more about this than I do but I noticed that Buffalo commenters were shocked about ECMC so I tried to check out why he might possibly go there.
Stacey (Caregiver to Husband)
Lymph Node Removed 10/12
Dx SCC MET 10/12
No Primary Tumor Found
IMRT x 33 (Started RT late 11/12)
CT Scan and PET Scan Clear 4/13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I agree this whole thing sounds screwy. One would think that with his money he would have ostensibly done a better job pursuing this. JM2C's
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | I lived outide of Buffalo for 52 year. ECMC was at that time a hospital for the people who couldn't afford anything else. Maybe it's changed in the last 15 years I don't know, but Roswell is probably 10 miles from ECMC. They take in a lot of the homeless (ECMC) some sleep in the hallways that's the way it was, might have changed. I still can't believe he went there.
Stacey, I have a feeling he had his teeth pulled because of the pain and not sure what was wrong at the time, that's what I got out of it. This has been going on for months with him.
He's not a smoker or chews. But I did notice when he's interviewed he talks like he has something wrong with his sinuses. I noticed that years ago, might be nothing.
It upset me I wrote to WINK News in Buffalo about it. Lets see how this plays out, I'm sure he has the best medical insurance there is and he certainly has the money for the best.
My prayers are with him and his family they've had their hard times with their son, Hunter.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So I read a short blurb this am in my sports section saying that Jim is scheduled for surgery to remove part(all?) of his left jaw and teeth on that side and his docs will not recommend radiation post surgery.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Today's LA Times as well yesterday's CNN dot com report that he's saying he had left side jaw and teeth removal and that he's cancer free, no chemo or rads necessary. Good news for Jim. I wonder if he's ever visited this site or even knows about it?
For the record, a friend of mine in the sports biz told me some weeks ago that Jim had been a tobacco chewer.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | David2 I read the same thing this morning. I wonder what Stage Cancer he has, no rads or chemo. I pray everything goes his way.
I wrote to Wink News in Buffalo about this forum hoping someone would tell him about it.
Never knew he was a chewer.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thbis is d=sad no matter ho you are.. I haven't seen M. Douglas mentioned here yet. I do like this guys acting I did his Dads. I hope Douglas and kelly both beat this damn stuff.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL I still make the typos. Not many words I typed above nmake sense. Sorry bout that.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | He sure got lucky if this is true. Having no jaw or teeth is terrible. Must include not much of a tongue either. I would like to know how many times my thriat was opened for work they did ib my throat. It feels like a railroad storge yard for cars with so many scars under my chin. LOL Wish the hell they would move some freight out and get rid of some rails. Kelly is one lucky guy to not need any the fun treatments.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Jim,
I was in Buffalo last week, I asked around about Jim Kelly. I was told he went to ECMC, but had a team of Doctor's from Roswell Cancer Center operate on him. ECMC has become the state of the art trauma center. What I was told they had equipment Roswell didn't have that's why the team of Doctor's went there to operate on him.
I hope you feel better soon you haven't been around here much.
Take care,
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 |
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | NY Daily News reports today that Jim Kelly is having surgery on Thursday at Lenox Hill Hospital in Manhattan.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Oct 2013 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2013 Posts: 33 | I hope Jim will use his popularity to generate awareness on oral cancer and HPV. Michael Douglas has done videos and I believe helped to get the word out. There needs to be more research done. Hopefully Jim will make it through this and can become a spokesman for the cause. We will be praying for him.
Curt
Age 43, nonsmoking, social drinker
Left tonsil cancer
SCC HPV+16
Stage IV
tonsillectomy, robotic radical tonsillectomy and neck dissection
4 of the nodes removed had cancer. 2 had extra capsular spread.
3x cisplatin 33x rad 11/18/13
Completed treatment 01/08/14
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | OCF was quoted in a few newspaper articles regarding oral cancer along with this announcement. Jim Kelly's surgery is not possible, at the moment, and will undergo Chemoradiation instead at Lenox Hill Hospital, possibly surgery in the future, if needed.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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