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#165416 05-23-2013 02:58 PM
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So, today my Dad decided to try some enchilada soup my friend made for him (all he has had for weeks are Ensure shakes). He got it all down just fine and said it was absolutely delicious. So, I go home and he calls and tells me he ate a Saltine cracker with mustard on it!!!!!! He said the mustard didn't bother his mouth and he just needed extra water to get the cracker down! THEN, he decided he wanted to eat some salsa from Chili's that my Mom had in the fridge--he had some spoonfuls of that and said it was just fine! We're so excited!!!!! We feel like he is finally turning a new leaf!!!! 4 weeks post radiation and he can eat solid food!!!! He wants to try out a little hamburger from McDonald's and see how it goes. haha. He's on a roll now!!! He's already got a list of foods he wants to try and homemade bacon gravy is at the top of the list. :))


Brandi, daughter of:
Jack, age 69, non-smoker, BOT primary, Stage 4, HPV+
1/28/2013: Surgery. All cancerous masses removed. Dad is CANCER FREE!!!
2/26/2012: Beginning of TX. Weekly chemo: Carboplatin and Taxol. Daily RT (about 40 total)
4/25/2013: Will be last day of TX, both chemo and RT
shannette22 #165423 05-23-2013 04:30 PM
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That's great, Brandi! Just make sure he has the water for washing things down.

Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
shannette22 #165438 05-23-2013 06:58 PM
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Great news!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
shannette22 #165448 05-23-2013 09:19 PM
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excellent progress, go go go!


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
shannette22 #165452 05-24-2013 03:45 AM
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Woo-Hooo!!!!! Yeah!!!! Im so happy to read your great update. You just made my day. What a difference a few days can make with recovering.

I found success with relearning to eat at buffet restaurants. Your dad can try a bite or 2 of all kinds of different foods. Tell him to avoid rice for a while. It sticks and can cause choking.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
shannette22 #165459 05-24-2013 05:31 AM
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Keep it going! I don't know how it does it, but definitely has a taste for spices. I can eat a Big Mac, due to the special sauce, but that's even spicy sometimes for me.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






shannette22 #165472 05-24-2013 06:16 AM
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Fatty meats have more moisture than say chicken, etc so have him try those first. I found ham steaks very juicy and easy to eat at first. Also anything covered in sauces helps.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
shannette22 #166463 06-12-2013 07:50 AM
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Yeah!!!! Just rejoicing with you... saltines with mustard though???? ACK! wink


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
davidcpa #166491 06-12-2013 09:48 PM
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chicken... yeah blahhh. good idea about the more fatty cuts of meat will need to try that out.

Last edited by donfoo; 06-12-2013 09:49 PM.

Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
donfoo #166512 06-13-2013 06:06 AM
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Don, I eat fatty cuts of meat too, like Ed, fried, braised meats. I like rib eye, skirt, flank, oxtail, pig feet, chicken wings, buffalo style, but not spicy, fatty pork, Chicken deep fried, oven fried, dark meat only, seafood saut�ed in butter, oil. Fat increases taste, makes it easier to swallow and also increases appetite.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






shannette22 #166586 06-14-2013 10:40 AM
Joined: Jul 2011
Posts: 945
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Sausages and hot dogs (get the uncured natural kind without the nitrites/nitrates added during curing) are also easy to eat. Gilbert's are excellent - get stay away from the chipotle as it is pretty hot.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Maria #166587 06-14-2013 11:45 AM
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I liked the uncured hotdogs too, but even better bratwurst, and other German sausages. I had a burtito from Chiptoles, and the pork is least spicy, I do not get any of sauces., I got brave, and had them the pico de gallo, something like that, all the others trimmings, and sour cream mellows the heat, guacamole is a little spicy. Starting out after rads might be too much slice food, took me several years, but some just jump into the fire.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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