Previous Thread
Next Thread
Print Thread
Page 4 of 5 1 2 3 4 5
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Congrats on completing the treatments!

You mentioned that "because he felt bloated". If he is taking any pain meds, constipation can be a real problem - even if he is only drinking meal replacements! He will feel more like eating if things are moving along smoothly. Your PA or oncology nurse will likely have some suggestions.

Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Wonderful news, Colleen! Sounds like your husband is doing so much better! As Maria mentions, it might be a good idea to check on how things are moving out and not just your husband's nutrition intake. My son also had constipation - pain meds can do that. I remember having to get stool softeners for him over-the-counter at the drugstore.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: May 2013
Posts: 42
Sturt1 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: May 2013
Posts: 42
He always feels better with the hydration too. : )

Joined: May 2013
Posts: 42
Sturt1 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: May 2013
Posts: 42
Yes we have had issues with constipation, have an arsenal of remedies on hand .

Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Glad that you have a variety of remedies. Some on this board refer to cancer as the big "C" and constipation as the little "c".


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
The little "c" is not so little to the one experiencing it. In fact, I've had friends who get really grouchy when in the throes of the little "c". So it's good to keep on top of it - or ahead of it. We had a really good thread on this some time ago with some great suggestions on various ways to cope. Hope everything comes out ok. :-)


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Oct 2012
Posts: 1,275
Likes: 7
Assistant Admin
Patient Advocate (1000+ posts)
Offline
Assistant Admin
Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,275
Likes: 7
Congratulations on completing treatment. He will start feeling better in a couple of weeks and you will too.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Joined: Aug 2012
Posts: 214
Likes: 1
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Aug 2012
Posts: 214
Likes: 1
Way to go Colleen, 3 more tough weeks to go. My goal at that time was just "get thru the next feeding". It sucked, but improvement is not far off. Once he sees "Improvement", watch his attitude improve.


Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
Joined: May 2013
Posts: 42
Sturt1 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: May 2013
Posts: 42
So we have entered week two of the recovery phase. We have some issues trying to get the prescribed 6 cans in per day. He has been getting the water intake in, but only averaging 2 cans of the 6 he is supposed to be doing.. Have had some not so good falling outs about this over the wknd as so concerned as he is just wasting away on me! Took a hands off approach since, thinking maybe if i just let him do...he will step up to the plate but still only two cans.To me I feel like he is sabotaging his own recovery. I did call the PA and told her what was going on. She said she would talk to him that day as he was coming in for IV hydration. But she felt right now if he was getting the water in that was good and he could work on getting the nutrition up. I totally disagree with that, and think we should be working on a plan to get the prescribed ammt in- whether it be from continuous feeds during nite or ? Any pros, cons or suggestions. He is taking sips of water,tried some jello, not so good. Made him some mashed potatoes as MD stated thicker stuff would be easier....but he was,not interested..input appreciated, thx.


Colleen
Wife/advocate for husband. 52 yo nonsmoker
ISSC tonsil stage IVa. HPV + Enlarged node & tonsil,
CT 2/13
Bx lt tonsil 3/8,
PET 3/16
Tx started 4/9/2013 Cisplatin x3 and IMRT x 7 wk
Tx end 5/29
GT 5/24-7/17
Officially in Recovery Phase! : )
CT scan 8/13-NED !
CT scan 7/14-NED
5/2018- 5 year anniversary -NED
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Listen I was just as stubborn probably more so than he sounds and I was not getting enough cans post Tx and one day appx 2 weeks POST Tx I was so weak, so frail, so ashen looking my wife said she was taking me to the hospital. I initially refused and she said "OK so just lie there (in the bed) and DIE!" With that she left the room. I couldn't talk so I had to wait for her to come back which she did after a few minutes. I was ready to concede. I was admitted and the docs said I was 24 hours from dying. They inserted a nasal tube in me; I used it for 2 weeks; pulled it out at home myself and it saved my butt! Of course she was the one that really saved me.

Moral is to have them insert the nasal tube. It only takes a minute or so and it was totally pain free. It makes a HUGE difference because there is no longer any pain from trying to swallow and it cured my nausea which was my main nemesis during recovery. As I said, after I knew I didn't need it anymore I called my doc and he gave me the OK to pull it out myself. The rest has been all up hill except the getting older part.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Page 4 of 5 1 2 3 4 5

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5