| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hello Survivors! We have an annual golf tournament benefitting OCF that is being organized for July 10 in Minneapolis, MN. They are looking for an oc survivor to speak at the dinner that is held after golfing. The organizer, Joan Willshire, lost her husband to oral cancer 3 years ago and does this to honor him and support OCF. If you are interested, please contact Joan at [email protected]Thank you!! Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Feb 2012 Posts: 151 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2012 Posts: 151 | I just emailed Joan for additional information. I would love to have my husband speak!!! Keep your fingers crossed that he will agree. (Thankfully he will do just about anything these days including eating all the healthy food and green smoothies I make him.) I am anxious to see if he will agree to this with his "no need to attitude" about his cancer but he is a Pastor so speaking would be no problem.
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Terri that would be SO cool!!! He would be great!
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Terri, that is great!! Keep me posted...
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Feb 2012 Posts: 151 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2012 Posts: 151 | I am shocked!! I am emailed Joan and was going to wait until I had details about the Golf Tournament to benefit OCF but as usual I couldn't keep it to myself. I just had to tell my husband about my idea of him speaking at the event. I couldn't believe he was interested and I didn't even have to twist his arm. I heard back from Joan tonight and it is a go. This will be interesting, I will have to coax him a on a couple things. With his "no need to know attitude" he doesn't even know the name of his cancer.
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | That is awesome!! Go Terrib!!!!
The OCF events are fun, and healing, and amazing, it's like magic and I encourage everyone to attend one. Meeting others that know the struggle, it's like meeting a family member, kin. Getting to listen to others survivors stories and how they handle survivorship, I've learned so much in the last year being able to be a part of the OCF events it just blows me away.
Susan Lauria, Jamie O'Day and all of our organizers and volunteers do an amazing job for us, and I hope to see more members on these forums stepping out and sharing and plugging in, our stories are powerful and there is strength in numbers. That's how you beat cancer and raise survival rates. Love the spirit sister!!!!
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | YAY!!! This is awesome. I can't wait to see how this turns out!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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