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#16003 07-21-2004 11:07 AM
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Patient Advocate (old timer, 2000 posts)
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My sister in-law had an ENT give a second opinion after laser removal of a leukoplakia patch with a biopsy indicating dysplasia (at my insistence). The ENT brought up long-term use of cinnamon as another suspect. Has anyone heard of this? He claims that prolonged exposure to cinnamon as in chewing gum constantly in the mouth could be a contributor to oral cancer. I was interested in this, especially after chewing 2-3 packs a day for 10-15 years. It seems like something new every day.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#16004 07-21-2004 11:08 AM
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Hi Eileen
I,m sure you are Okay to take your vitamin regimen
The results were pointing toward male smokers.I do not know if you have access to the American journal of Epidemiology Vol 152:149-162. I find it funny and disappointing that now some manufactures of multi-vitamins are making a multi with out the beta-carotene and calling it a smokers vitamin. remember that these are studies and not scientific research in a controlled environment. Im sure research will follow regarding this topic,keep your ears and eyes open.


Best regards to all and I wish everyone to live their life to the fullest.

#16005 07-21-2004 11:31 AM
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One thing I did notice when this was going on inside my mouth, is that layers of skin inside my mouth were peeling and it would only be noticeable when I would wake up brush my teeth and go to work. At work or on the way to work this would happen.

#16006 07-21-2004 01:21 PM
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Put the cigarettes down....take the money you would have spent on the cigarettes and put it in a savings account. It should not take long to have a nice vacation.

#16007 07-21-2004 04:08 PM
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Hi mtnwmn:
The cigarettes, the Alcohol,the Vitamin regimen I was on are all out of my life. The reason I go on about the vitamins is because of the new studies coming out about them, the fact is if this becomes true, that to a smoker there is a risk to all types of cancer. My energy will be focused on going after the manufacture that I so religously took for the last 8 years of my life. and if all else fails hopefully the medical professions will be pro-active with their patients and give them the knowledge of what not to take if a person is smoking. I have noticed on some of your American Ads regarding FDA approved persciption drugs that at the end of the commercial the audience is informed if there is a risk to smoking and cancer while taking the medication. This is the direction I am going. I know this is all up hill and I may not get anywhere with it but I will be that much more knowledgeable about the use of these products they call anti-oxidants and antidotes that are claimed to ward off everything from hangovers to lung cancer. Concerns are mounting over the safety of these products which are classified as foods, and therefore undergo less rigorous testing than medicines.

#16008 07-22-2004 05:12 AM
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
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Fourhits,

We have had many discussions about vitamins, supplements, etc., on this board and I am confident it will never end. As far as you say you will be spending your energy on going after the manufacturer of whatever you have been taking for the last years, is this your anger about having cancer and trying to find "blame". We all go through this at times and most move on, realizing that you will never isolate exactly one reason you have cancer. In your case, you know you smoked for years and this could certainly indicate something of a risk, as would the alcohol. But even without these, many people get cancer. You could spend the rest of your life identifying "causes" but truth be known, it is much more complex than any one thing "causing" it. If we avoided everything that any study has been shown could contribute to cancer, we would live in a bubble and never interact with anything from outside air to other people.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#16009 07-22-2004 03:24 PM
Joined: Mar 2002
Posts: 4,912
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OCF Founder
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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Likes: 52
Fourhits. If you are going to quote studies on the boards, post the name of the study, the journal that it was published in, i.e. a peer reviewed journal, and the author and date. I disagree with much of what you have posted, but will withhold responding in detail until I have the opportunity to evaluate the actual articles. Without references no one reading your post can make a judgment as to the value of your opinion which you so strongly state. I will say at this point that I disagree with your premise that vitamins, and cartinoid food by-products sold as supplements were the causative factor in your developing cancer. There are plenty of published articles and current clinical trials going on right now that show the chemo protective benefits of many of the things you mention including beta-carotene. Arteriolosclerosis that you mention you have had to deal with (and me too) is highly linked to long-term diet, degree of aerobic exercise engaged in, and smoking, and less to supplements and smoking. You have not revealed much about your diet during your lifetime, or exercise habits, both the major contributors to arterial disease, which along with tobacco have a significantly greater and well documented causative impact than any over the counter supplement or vitamin taken for only a few years.

I do find it interesting that you say that in 2000 you had a noticeable tissue issue in your mouth, and it wasn't until sometime in 2003 when you had a actual sore appear. My first question to you is why did you not explore in 2000 (by seeing a doctor for an evaluation) what was clearly an unusual, not normal, and now obviously precancerous condition? Rather you let it go for 3 years, and continued to smoke during that period. Given the thousands of articles that have been published about tobacco, precancerous lesions, and finally the resulting cancer, I am curious why now you would prefer to put the blame on beta-carotene and a vitamin regime, which is only a co-factor in a few cancers, in a few studies, when the other indicators such as the continued use of tobacco which leads to tobacco carcinogenesis are more obvious and likely. Your progressive etiology follows to the letter, a typical tobacco related cancer. The issue of causes vs. cofactors is becoming well understood. All the things that you mention are co factors and not themselves actual causes. In almost all cases the application of Achem


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#16010 07-22-2004 05:35 PM
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I will follow up with articles, but not today or tomorrow. I will be painting my bedroom.


Greg

#16011 07-22-2004 06:14 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
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Posts: 3,552
Might I remind you also that you hijacked Itwins thread and that this topic belongs in "Adjunctive Therapy".

And please read the rules about links.

I had a well meaning person at my church try to sell me noni juice last week - God help us!


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#16012 07-23-2004 02:15 AM
Joined: Dec 2003
Posts: 2,606
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Gary,

How much was it? Just kidding laugh !

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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