| Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2012 Posts: 50 | So here I am almost a year later and such a sad sack. I was feeling great because I'm mostly back to "normal". Eating real food although several foods still present a challenge, gained some weight back. But we started putting the Christmas decorations up and I got really sad. I don't know if its because we're getting close to my one year anniversary or I'm still haunted by the what ifs but its almost like my mind is saying "step back, don't get too involved, this might be the last one" And now I'm dealing with vertigo and dizzy spells I'm convinced are from radiation.
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | I am so sorry that you are saddened by the holidays. This should be a time to rejoice and be thankful for all that is. I hope you can find joy in your heart for you are nearing the one year mark. YEAH! And all is well. Live like you mean it. Happy Holidays!
Last edited by Bette; 12-03-2012 07:23 AM.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Feb 2012 Posts: 151 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2012 Posts: 151 | As my husband has told me numerous times, "each day is a gift". I tend to dwell on the what if's more than I should and I know I should take his advice. Even without cancer we should live each day knowing it can all change in just a matter of seconds.
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Everyday is a gift - absolutely - two weeks from now it will be the 2 yr anniversary of my dx... Dec 20 - dismal Christmas mostly I enjoyed it with family but was scared it would be my last. I still have those days of fear. But perspective helps a little. You have todays- no one has a guarantee of a tomorrow - cancer or not. Enjoy now - it will get easier in time to plan for the not so distant future. Took me a while and i still have those moments - but really love the people you share your life with, enjoy your pets, children, and friends. Live your today. Do what you can to try and stave off a recurrence then accept that you have done what you can the rest is up to fate don't let cancer steal your joy.
Ps the vertigo and dizzy can be a fallout from rads. I still have those moments of dizziness - it can also be hypetensiveness or even not enough iron... Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Your screen name is Winteriscoming, is it due to its like or dislike? Winter blues is very common, possibly due to the lack of sunshine, other thoughts. Maybe have your vitamin D levels checked, and tell the doctor about the dizzy spells, which can be many things, even inactivity. If these blues impact your daily life, maybe see a professional. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | If you had a signature it would be alot easier for other members to offer info and support. Ive asked before to add one, it really will benefit you. It makes it much easier for others to know where you are coming from and offer guidance. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2003 Posts: 122 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Apr 2003 Posts: 122 | Dear Winter, Sometimes I feel like it's my RIGHT to be depressed around ANY holiday. I was diagnosed on Valentine's day, been single for way way WAY too long, 1st 2 teeth broke out (lost 6 so far) on 4th of July, was told a few weeks ago that Eritux hasn't been working for me for quite some time and my tumor has almost doubled in size, and, to steal the show-it began to hurt somewhat constantly on Christmas day. But you know what? Sunsets are still occasionally spectacular, mornings are still occasionally inspirational, I still get a lump in my throat NOT from cancer when I listen to my nephew describe how excited he is (and how well he's doing) in school, and my cat is still overjoyed to have a great place to curl up when I sit down to read with a blanket. Life is good. Life is fun. I just came across someone's signature quote (sorry don't know who) that says in part, "don't let cancer steal my JOY"!!!! That is becoming my life motto for the next little while! Love to all!
SCC right tonsil Dx 14 Feb 03 No surg till Apr 03 Lip resection Sep 05 "frankenface" Recurr Apr 10 2/3 tongue removed Jun 10 SPEECH/SWALLOW/DROOL challenges FUN! Dec 10 Tumor @ nodes/larynx/cart artery growing Erbitux Mar 11 Hyoid bone regrows!? recur Dec 12 begin taxo chemo 10yrs-still kickin!
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