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#159368 - 12/24/12 10:20 PM It's great to be alive!  
Joined: Apr 2003
Posts: 122
gpk101 Offline
Senior Member (100+ posts)
gpk101  Offline
Senior Member (100+ posts)

Joined: Apr 2003
Posts: 122
Atlanta, GA, USA
Thanks in no small part to you terrific folks I am experiencing stable health and feeling bright-eyed and bushy-tailed this Christmastime. Thank you one and all and may every good continually come into your lives. Much love and many thanks!


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!

#159370 - 12/24/12 11:09 PM Re: It's great to be alive! [Re: gpk101]  
Joined: Jan 2012
Posts: 112
braziliangirl82 Offline
Senior Member (100+ posts)
braziliangirl82  Offline
Senior Member (100+ posts)

Joined: Jan 2012
Posts: 112
br
You have such a story! So glad to see all this brightness with you! Keep well and merry xmas! smile


December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
#159389 - 12/25/12 04:40 PM Re: It's great to be alive! [Re: gpk101]  
Joined: Feb 2011
Posts: 117
Ingrid K Offline
Senior Member (100+ posts)
Ingrid K  Offline
Senior Member (100+ posts)

Joined: Feb 2011
Posts: 117
Huntley, IL
You are such an inspiration to all of us. Keep up the good work !


DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
#159399 - 12/26/12 12:25 AM Re: It's great to be alive! [Re: gpk101]  
Joined: Jun 2007
Posts: 9,590
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,590
PA
Hope you had a great day! Best wishes for your wonderful outlook to continue thru all your days ahead smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#159411 - 12/26/12 06:21 AM Re: It's great to be alive! [Re: gpk101]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Merry Christmas and more power to you.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#159429 - 12/26/12 05:59 PM Re: It's great to be alive! [Re: gpk101]  
Joined: Jul 2012
Posts: 2,971
PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 2,971
NYC
Happy Holiday's!


10/09 T1N2bM0 Tonsil
11/09 TPF IC 6 Months Hosp Tx Stopped
01/11 35 IMRT 70Gy 7 Weeks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap Graft IORT 12 Gy
10/12 25 IMRT 50Gy 6 weeks Taxotere Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Removed IORT 10Gy
12/13 25 Proton Therapy 50Gy 6 weeks Carboplatin
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Segmental Mandibulectomy Fibular Free Flap
04/17 Regraft hypergranulation Donor Site
06/17 Myocardial Infarction






#159431 - 12/26/12 07:07 PM Re: It's great to be alive! [Re: gpk101]  
Joined: Jul 2009
Posts: 1,366
David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,366
Los Angeles
A great and refreshing outlook after so much, as we say in the old country, tsooris (trouble). Best for the new year.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17

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