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#159368 - 12/24/12 10:20 PM It's great to be alive!
gpk101 Offline
Senior Member (100+ posts)

Registered: 04/03/03
Posts: 122
Loc: Atlanta, GA, USA
Thanks in no small part to you terrific folks I am experiencing stable health and feeling bright-eyed and bushy-tailed this Christmastime. Thank you one and all and may every good continually come into your lives. Much love and many thanks!
_________________________
SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!


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#159370 - 12/24/12 11:09 PM Re: It's great to be alive! [Re: gpk101]
braziliangirl82 Offline
Senior Member (100+ posts)

Registered: 01/26/12
Posts: 111
Loc: br
You have such a story! So glad to see all this brightness with you! Keep well and merry xmas! smile
_________________________
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.

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#159389 - 12/25/12 04:40 PM Re: It's great to be alive! [Re: gpk101]
Ingrid K Offline
Senior Member (100+ posts)

Registered: 02/25/11
Posts: 117
Loc: Huntley, IL
You are such an inspiration to all of us. Keep up the good work !
_________________________
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.

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#159399 - 12/26/12 12:25 AM Re: It's great to be alive! [Re: gpk101]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8730
Loc: PA
Hope you had a great day! Best wishes for your wonderful outlook to continue thru all your days ahead smile
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#159411 - 12/26/12 06:21 AM Re: It's great to be alive! [Re: gpk101]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 5151
Loc: Toronto canada
Merry Christmas and more power to you.
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#159429 - 12/26/12 05:59 PM Re: It's great to be alive! [Re: gpk101]
PaulB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 07/06/12
Posts: 2669
Loc: NYC
Happy Holiday's!
_________________________
10/09 T1N2bM0 Tonsil 48
11/09 TPF Chemo 187 days Hosp Paralysis Waist Down
09/10 Optic Ischemic Neuropath, Neovascular Glauc
09/10 Met
02/11 35 IMRT 70Gy
06/11 30 HBO
09/11 Met
10/11 RND
04/12 Met
05/12 Met
06/12 SND
07/12 Met
08/12 RND IORT 12Gy Pec flap
10/12 25 IMRT 50Gy 6 Tax/Erbit
08/13 Met
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid IORT 10Gy
12/13 25 Proton 50Gy 6 Carbo
07/14 30 HBO
08/14 Brachial Plexopath Arm Paralys, Orthostatic Hypotension
11/14 Teeth Extract
03/15 ORN Surgery






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#159431 - 12/26/12 07:07 PM Re: It's great to be alive! [Re: gpk101]
David2 Offline
Patient Advocate (1000+ posts)

Registered: 07/12/09
Posts: 1297
Loc: Los Angeles
A great and refreshing outlook after so much, as we say in the old country, tsooris (trouble). Best for the new year.
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 5 years all clear in 6/14

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