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#158766 12-10-2012 06:04 PM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
[quote]Tubie or not tubie. that is the question[/quote]
(Apologies to Shakespeare)
If you are a long term G or J Tube user, you will enjoy this months edition of Tube Talk from the Oley Foundation.
Tube Talk - nov/Dec
A funny story by a stubborn cranky old tube user -( NO, it's not me, but Al Toman)about his tube travails.
An amazing story of travel by a young woman on IV tube feeding, even tougher than enteral (our style)
Updates on Abbott getting out of the pump business.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
I missed this post during my travels here before. The name Al Toman sounded familiar to me, and then recalled meeting him online a few years ago on another site He was helpful to many seeking advise with HNC. The Chef and author mentioned, Grant Achatz, was inspirational to me, especially with taste and having had stage 4 tongue cancer, after reading an article about him, "The Chef Who Lost his Sense of Taste." I didn't read his book yet, "Life on the Line", but will. Thanks for posting


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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