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#158240 - 11/28/12 10:51 PM Help Me Live
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)

Registered: 03/03/08
Posts: 3082
Loc: Alexandria VA
That's the title of the book that I finally broke down and bought this week. It's subtitle is "20 Things people with cancer want you to know". I've read this book several times but never bought it partly out of pique that the author, Lori Hope, had written the book that I thought I could write based on the posts in the Don't you just hate it when thread I started.
But with an Amazon gift card from my birthday burning a hole in my pocket, when I saw that she had a revised edition out specifically in response to Christopher Hitchen's Vanity Fair article: "Miss Manners and the Big C" on the need for a "a short handbook of Cancer etiquette", I ordered it (using the OCF link of course).
If anyone is looking for a Christmas gift or a great read about the cancer experience, this is the book for you. On a poignant note, the new revised edition has an "after-afterword" by the author about how her lung cancer had come back again in 2011 after eight years. Lori Hope died on September 27, 2012 so I can't follow up on my plan to have her acknowledge OCF or add to her blog some notes on oral cancer.
I recommend that you take a look at the table of contents on Amazon (it's free) and see if that does not hook you.
I had no idea that some of the things we endure were universal cancer issues, somehow I thought the comments etc were unique to our situation. Out of all the cancer books I've read, this one is really good
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

#158273 - 11/29/12 08:30 PM Re: Help Me Live [Re: Charm2017]
Bette Offline
Senior Member (100+ posts)

Registered: 10/28/12
Posts: 118
Loc: Central California
Thanks Charm,

Was looking for some good reads while Reg is the hospital. Will check it out.
Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy


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