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#158170 - 11/27/12 02:19 PM You'd Better Not Die or I'll Kill You  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
The subject line is the title of a new book reviewed in today's Wall St. Journal. It's subtitle is: A Caregiver's Survival Guide to Keeping you in Good Health and Good Spirits.
The author, Jane Heller, whispered the words in the title to her husband as he was wheeled into surgery. The chapter titles listed in the review sound intriguing:
Sex? Romance? Is Anybody Getting Any? or
When Loved Ones Start Taking on a Different Personality and You start Wishing they'd disappear.

Whenever I see a book like this, the first thing I thing of is that I'll bet it's not as helpful to caregivers as the OCF board since it's not focused on oral cancer. The complications and challenges of our cancer are very daunting. But I thought I'd share the title since there are some commonalities among caregiving and some authors have a way with capturing the frustrations and challenges in words.

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#158181 - 11/27/12 05:01 PM Re: You'd Better Not Die or I'll Kill You [Re: Charm2017]  
Joined: Jul 2009
Posts: 1,376
David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,376
Los Angeles
Good one, Charm. But she stole my line! I have a friend who does stand up comedy, and I told him at the beginning of my treatment that if he ever stopped making jokes about my situation I'd take a break from dying and drive over to his house and kill him. Oh well. GMTA I guess.

Sounds like a fun book though, I'll look for it.

David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17
#158205 - 11/28/12 08:49 AM Re: You'd Better Not Die or I'll Kill You [Re: Charm2017]  
Joined: Oct 2011
Posts: 67
Shauneen Offline
"OCF Canuck"
Shauneen  Offline
"OCF Canuck"
Supporting Member (50+ posts)

Joined: Oct 2011
Posts: 67
Calgary, Alberta
Love this - Charm, you are my fave!

Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.

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