Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
Joined: Nov 2012
Posts: 2
"OCF across the pond"
Member
OP Offline
"OCF across the pond"
Member

Joined: Nov 2012
Posts: 2
Hey everyone... *waves* I have some questions about some lumps I have in my mouth. I wondered if there was a possibility anybody could offer some advice.

Almost two years ago I noticed a couple of little bumps the roof of mouth. I have very crooked teeth and they are both located behind the two most misaligned ones. When I saw a doctor about this those two years ago, she told me that she thought it was just the roots of the teeth being awkwardly placed due to their misalignment. She told me she was 'not an expert' but she showed no concern and didn't send for any tests or recommend any further action.

My mind was put at rest for a while but recently I just can't help but worry about them again. I do not have any other symptoms of the illness - I have bad breath, but I have mostly assumed that is down to severe chronic IBS and being a smoker - and the lumps have not got any bigger since I first noticed them.

I am seeing a dentist soon but I want to see my GP beforehand, just to check them again as I'm worried... I know it is not possible to diagnose over the internet, but I just wondered if anyone had some advice or suggestions?

Thank you so much,
catfromjapan.

Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Cat,

First off STOP USING TOBACCO or you will surely be posting a real concern here!!!!!

RE your lumps, no one can really diagnose your lumps in your oral cavity on this site but I can tell you that anything in your mouth that has been static and has no pain for 2 years most likey is nothing to worry about. Get it checked out but I wouldn't spend anymore time thinking about it.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Sep 2012
Posts: 381
"OCF Canuck"
Platinum Member (300+ posts)
Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
Cat, my doctor also said no issues, and my dentist was the one to catch it. Make sure to mention your concerns to the dentist.

I'm with David ----quit smoking now! It took being diagnosed with tongue cancer at 39 for me to quit. Now I have had half my tongue removed, my neck slit open, and 14 hours of surgery to recover from, not to mention that this was just the start.

I know it's hard to quit. I had smoked since I was 14 and I was at a pack a day, and I liked it. If I can quit, so can you. Don't kid yourself that this cant happen to you.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
Joined: Feb 2011
Posts: 117
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Feb 2011
Posts: 117
DITTO to everything Tina said. I was mis-diagnosed for 3 months by 2 different GPs, during which time my tongue tumor grew to the point where I lost 75% of it.

Go to see a good dentist and/or an ENT familiar with oral cancer.

And throw the cigs out...NOW, you can do it. I smoked for 40 year and if I can quit, so can you. Stopping now may keep you away from this forum forever more.


DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
Joined: Oct 2011
Posts: 67
"OCF Canuck"
Supporting Member (50+ posts)
Offline
"OCF Canuck"
Supporting Member (50+ posts)

Joined: Oct 2011
Posts: 67
I began to have pain in the right side of my mouth in 2009. It wasn't until 2011 that it was finally diagnosed as cancer. Maybe because of a sharp tooth, maybe because of the irritation of the first biopsy, maybe because of genes, maybe because of Coors light and my love of nicotine, sex, coffee, mouthwash, red meat etc, etc, etc...

It was a perfect storm. And one that I hope you never have to go through. Let us know how everything turns out. No matter what you do or have done - NO ONE deserves to have oral cancer.

All you can do is try to reduce the risks, but many people get this cancer with no risk factors at all. It's a crap shoot, but you can do some things to get the odds in your favor.

BTW, I still love the smell of tobacco - but it's N.O.P.E (Not One Puff Ever) for me. But - if I was diagnosed as terminal, or I knew the world would end tomorrow, I would light up!!!

Nicorette inhalers are my choice now. Damn addictions.


Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
smile okay... All of the above, but they do sound like nothing. Definitely have it checked out though! wink by a qualified someone. smile ENT? Oral surgeon. Hugs! Hope you don't have to join our group.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Nov 2012
Posts: 2
"OCF across the pond"
Member
OP Offline
"OCF across the pond"
Member

Joined: Nov 2012
Posts: 2
Hello again everyone. Thank you so much for your replies, advice and reassurance.

I saw my GP yesterday and she had a good look at them and my mouth in general and said there was no sign at all of anything sinister... the lumps look totally normal and she echoed the last doctor I saw by telling me she thought they had just come about from the way my teeth had grown, and recommended that I talk to my dentist about getting a brace. I am seeing my dentist on the 5th of Dec so I am just hoping s/he can confirm this for me... it does make sense that this would be what it is, and I do wonder if I'm worrying over nothing, but I can't help but still be a little concerned, especially because of what's been said about GPs missing the signs smirk How do you go about getting an appointment with an oral surgeon/ENT? I live in the UK so I don't know if it's different here? I just want to make sure all is well.

Also on the road to giving up smoking smile Seeing a doctor about it a week on Friday and have an NHS quitkit coming in the post, as well as planning to make good use of my e-cigarette wink Hehe.

Thanks again everyone smile

Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
The only way IMO to stop smoking is to quit and tell yourself that you will never ever smoke another cig again.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
In order to see and ENT you can get a referral from your GP... for an oral surgeon that usually requires a referral from a dentist... Good luck but try to breath. smile it sounds like you are ok.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
I was lucky and never needed any referrals for any specialists. It depends on a persons insurance company if referrals are needed here in the US. Dont know about the UK.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Page 1 of 2 1 2

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5