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#157680 - 11/16/12 08:59 PM seeking general info  
Joined: Nov 2012
Posts: 1
Fast Eddy Offline
Member
Fast Eddy  Offline
Member

Joined: Nov 2012
Posts: 1
Northern California
Hi all. I'm looking for advise about and knowledge of any and all cancer treatments. I am not a cancer patient. I hope that you all are doing well and that this organization's efforts continue to work for the best for all.

Last edited by ChristineB; 11/17/12 03:29 AM.
#157682 - 11/16/12 09:19 PM seeking general info [Re: tina77]  
Joined: Sep 2006
Posts: 8,311
davidcpa Offline
Administrator, Senior Patient Advocate
davidcpa  Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
Eddy,

Other than to say that all cancer treatments involve some or all of surgery, chemo and radiation, your question is far too broad to answer. Please be more specific.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#157693 - 11/17/12 03:32 AM Re: seeking general info [Re: Fast Eddy]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
Please begin your own thread hen asking questions. There is a search function to look up information. That would help to answer your questions.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#157704 - 11/17/12 11:12 AM Re: seeking general info [Re: Fast Eddy]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
Eddy - Also, take a look at the main page of OCF - there are many links you can click on to get lots of information to help you get ideas on any questions you might have for anyone here.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#158499 - 12/05/12 02:45 AM Re: seeking general info [Re: Fast Eddy]  
Joined: Dec 2003
Posts: 2,600
Uptown Offline
Patient Advocate (old timer, 2000 posts)
Uptown  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,600
Murphy
Originally Posted By: Fast Eddy
Hi all. I'm looking for advise about and knowledge of any and all cancer treatments. I am not a cancer patient. I hope that you all are doing well and that this organization's efforts continue to work for the best for all.


Fast Eddy (my nickname growing up was Fast Eddie) I think I would answer your question by saying go to the NCCN website (nccn.org) and you will find any and all cancer treatments tucked away in a nice orderly fashion by types of cancer with suggested guidelines that are typically followed by all comprehensive cancer centers. You can even download a PDF file that allows you to follow Head and Neck Cancer in our case and see based on first treatment vs recurrence, etc. and a flow chart that shows follow up treatment as well. This should give you everything you want and more.

-Ed


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Diagnosis Post Radiation Lower Motor Neuron Syndrome 3/08.
Diagnosis Cervical Spinal Stenosis 01/11
Diagnosis Cervical Myelitis 09/12
Diagnosis Thoracic Paraplegia 10/12
Diagnosis Dysautonomia 11/12
Hospice care 09/12, off 01/13.
Diagnosis PLS 02/13
Diagnosis COPD 01/14
Diagnosis Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
Living life LARGE with no quit in this guy!

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