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#157663 - 11/16/12 01:21 PM Great American Teach-in
davidcpa Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8311
Loc: Gulfport, Florida

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

#157667 - 11/16/12 02:06 PM Re: Great American Teach-in [Re: davidcpa]
ackers Offline
"OCF across the pond"

Registered: 11/08/12
Posts: 7
Loc: UK
That sounds most impressive David. Educating these students about HPV will undoubtedly SAVE LIVES - which is some achievement! I only wish the awareness of HPV and it's link to oral cancer would be raised more in the U.K. The major cancer hospital where my partner is being treated for tonsil cancer didn't even test for HPV. It was only after a lot of insistence, reminding and chasing up that we got the histology of "strongly positive for HPV 16".

PS I am sure the flan was delicious!
Partner (never smoker, light drinker age 56)
lymph node noticed 7/20/12
DX SSC tonsil 8/8/12, T2 N2a M0 HPV 16 +,
tonsillectomy 8/15/12
neck dissection 9/25/12
IMRT (30) started 11/2/12 First Cisplatin 11/5/12, Second 11/20/12. Finished 12/13/12.
Follow ups - all clear

#157684 - 11/16/12 09:22 PM Re: Great American Teach-in [Re: davidcpa]
David2 Offline
Patient Advocate (1000+ posts)

Registered: 07/12/09
Posts: 1358
Loc: Los Angeles
Bravo, David. Unquestionably you're saving lives down the line. I wish I had some of that flan though!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 7 years all clear in 6/16

#157694 - 11/17/12 03:40 AM Re: Great American Teach-in [Re: davidcpa]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9428
Loc: PA
Great job, David!!!!
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

#157703 - 11/17/12 11:10 AM Re: Great American Teach-in [Re: davidcpa]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
That is so AWESOME, David!
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)

#157724 - 11/18/12 01:32 AM Re: Great American Teach-in [Re: davidcpa]
Gabe Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Registered: 08/02/07
Posts: 1301
Loc: Sydney NSW Australia
Well done David and I am sure your wifes flan was wonderful too wink
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family


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