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#156749 10-26-2012 03:03 AM
Lady1
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My husband went for his radiation simulation- had a hard time with the bite block and he has a strong gag reflex- any tips from those more experienced with this? Said he felt like he was drowning in saliva.

#156750 10-26-2012 03:23 AM
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Some members have taken medications to relax. Sorry I didnt take this so Im not sure what ones they used.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#156751 10-26-2012 03:47 AM
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What kind of medications?

#156752 10-26-2012 05:06 AM
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I didnt use this myself so Im unsure of what other members have used. Im sure someone who used this will be along soon and give you some names of medications.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#156753 10-26-2012 05:33 AM
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I use lorazepam (ativan) to help relax. Hope that helps :-)


Stage 1 tongue carcinoma in 1999 and again in 2001, removed surgically. Stage II tongue carcinoma in 2012, surgery, neck dissection, flap from forearm, trach (removed in hospital before leaving). Finished 30 rad tx on 11/28/12.

Jessica, age 38
#156756 10-26-2012 05:51 AM
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Others have said Ativan as well but that was to take the edge off. Not sure I've ever read about excess saliva being a problem. Perhaps a antihistimine may work but of course discuss EVERYTHING with your RO before you act.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#156771 10-26-2012 12:08 PM
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Ativan is definitely a help. For me anyway it takes a bit longer to kick in and the effect also lasts longer. Xanax - again for me - is more immediate and shorter acting. It also seems stronger, at least initially.

I also haven't heard about excess saliva at this point in treatment. Maybe that's just nerves too, although I think the reverse would occur for most people. David's suggestion of an antihistamine might help, dunno. But worth talking to your docs about.

Thoughts with you both.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
#156783 10-26-2012 05:07 PM
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Did everyone have a bite block? Kevin didn't.
I know when I worked in the dental profession bite blocks were tough. They are way back between your molars to keep your tongue back. You would produce more saliva having it in there because your body is trying to get it out. They may be able to use a pediatric one that wouldn't gag him as much. Just a thought.
I'm just curious to know if everyone had one.
I know Xanax worked for Kevin on a couple of other things. He said it has a pretty immediate effect. Hope you find something that works.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
#156786 10-26-2012 05:15 PM
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No bite block for Bill either...just checked with him to make sure but I knew that he would have squawked if there had been one.


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
#156787 10-26-2012 05:16 PM
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When I was going through radiation, they put what looked like a fudgesickle in my mouth for me to bite on. It did make me gag a bit, and to me, was worse than the actual mask.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
#156799 10-26-2012 09:17 PM
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The bite thing could have soemthing to do with where the tumor is located.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#156809 10-27-2012 03:17 AM
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I didn't have to put anything in my mouth either.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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It's a terrible feeling to have so much saliva that you feel like drowning during the radiation. The "bite block" sounds like the problem and it can not hurt to require a justification for using it. I never had any type of bite block, or stick etc for any of my three different rounds of radiation over 5 years.
I did try use my fluoride trays during the first round but they did generate too much saliva.
If the doctors are insistent on drowning your husband, then ask for a prescription for Robinul, which will stop the saliva.
I need to take it now for my MRI and Petscans since after the surgery and not being able to swallow, I have tremendous amounts of saliva and phelgm that I need to spit out constantly. The Robinul drys it up in a day or two.

Ativan is useful for the one hour procedure of Cyberknife so I could hold still that long, but not for IMRT unless there are anxiety issues.
Again, ask about the bite block, sometimes radiologists just do things because they always have done them without reqard for the individual patient. Put the burden on the doctor to solve the saliva problem that he is causing
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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I never had either. The bite stick, I believe, is made during the simulation, and used to limit tongue movement when radiation is given in certain parts of the H&N, and they may be used as radiation marker, although I had tattoo's. A mouth guard is to reduce radiation scatter, thus Mucocitis, from dental work, and often made by the dentist.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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I had one, I used Xanax before each treatment as the gagging is scary.My doctor said it was there to move my tungue away from a radiation line and save some tase (which it did). The saliva problem is not fun as the block makes it hard to swollow. I would deffinitly use it if you want as much taste as you can get on the back end.


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
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Posts: 145
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Jen had a bite block made out of putty as well.

The technicians told us it was used to make sure that the lateral tongue would remain still as there was a heavy concentration of radiation focused in that area.

Perhaps the reason why some have not had the bite block / stick is because there was no radiation treatment actually focused on the lateral tongue?


6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0)
3/9/12: Induced birth @ 36 weeks - Baby Hunter!
11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec.
24/10/12: 33xRad + 7xChemo
7/12/12: Tx complete
21/3/13 & 21/6/13: NED
24/7/13: SCC in Lungs - OP: Lobectomy (VATS)
29/1/14 passed away
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