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| | Joined: Oct 2012 Posts: 6 Member | OP  Member
Joined: Oct 2012 Posts: 6 | About 10 days ago i found out i have stage 4 scc of the mandible with some invovement of floor of mouth. Did have insitu oral cancer in 05 and 06, removed surgically.
It's all complicated by huge tori on bottom of mouth.
Had one opinion: mandibulectomy, tori removal and modified neck dissection, use of fibula flap followed by radiation. Going for second opinion with Dr R. Marx in Miami on Tuesday and then to Moffitt in Tampa for 3rd opinion on Wednesday with Dr T. Mcaffrey. ( i live closest to Tampa).
Hoping to find someione i feel comfortable with and also the least invasive.
Stage 4 mandibular/alveolar ridge/lateral tongue Oct 2012. Left mandibulectomy,partial glossectomy and reconstruction of floor of mouth,mandible.
Now have positive anterior margin of bone and some positive margins of soft tissue.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF! So sorry to hear you will need a mandibulectomy. Ive had this procedure done and its not the easiest procedure to go thru. Best chance for the very best medical care would be a top notch NCI cancer center. Moffitt is one of the top centers in the US. Im glad to hear you will get several opinions.
Best wishes with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2012 Posts: 6 Member | | OP Member
Joined: Oct 2012 Posts: 6 |
Stage 4 mandibular/alveolar ridge/lateral tongue Oct 2012. Left mandibulectomy,partial glossectomy and reconstruction of floor of mouth,mandible.
Now have positive anterior margin of bone and some positive margins of soft tissue.
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