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Joined: Oct 2006
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Joined: Oct 2006
Posts: 383
Coming up on six years out from treatment and if I eat processed food (Boxed, packaged, etc) and don't stay VERY hydrated I get an overwhelming salty taste. Not that I'm complaining because my diet has continued to expand and now includes a little bit of spice (I used to love "Hot & spicy" foods). Just keep trucking, experimenting, and stay hydrated.

Best Wishes,
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

Joined: Sep 2012
Posts: 74
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Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 74
Lefty, try distilled water. All other water tasted terrible to me after chemo but the distilled was okay, a great suggestion from my niece who drank it while she was pregnant. Karen


mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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Posts: 2,671
That's a good idea about the distilled water! My son could even taste the salt in the low sodium soups and even accused me of putting salt in his chicken noodle soup after he had expressly told me to get the low sodium soup. The taste bud for salt must be very active. It's coming up on 7 years for my son since he completed treatment but I remember how he said that certain areas of his tongue had certain tastes of their own and it seemed to him that each of the taste buds had their own reaction to taste. It really does get better, though and soon you will see small improvements and each one will be a celebration! Paul would try everything on specific parts of his tongue to see what reaction he would have and the day that he could taste the sweet taste of one M & M, it was a celebration - he was so happy, you would have thought he had invented sliced bread!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Sep 2012
Posts: 64
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 64
I taste salt w/o eating or drinking anything. It does seem somewhat less pronounced lately. I actually find that eating things that are normally salty or would go well with salt taste better than sweet things.


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
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