| | Joined: Sep 2012 Posts: 64 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 64 | I just read a summary of a small study comparing this to Biotene (I assume, it wasn't specifically named). This had MUCH better results. Has anyone tried it?
Last edited by LeftyS7; 10-20-2012 08:25 AM.
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | No, I havent tried this before. It may have been mentioned a while back. I hope to hear more from some of our members who have used this. Thanks for posting this, it may help lots of patients 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | I tried them, didn't really care for the way they worked. May have been a personal issue (They attach to roof of mouth) but I didn't get too much added relief from them. I really thought they would be awesome at night when you really dry out and aren't as aware of it but it didn't seem to help me. Others on the board at that time was posting mixed reviews so as with everything it worked well for some and not so much for others. Doesn't hurt to give them a shot. Good Luck!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: Jun 2012 Posts: 11 Member | | Member
Joined: Jun 2012 Posts: 11 | I tried them but didn't really care for them either. My mouth has been dry for so long that they didn't seem to help much at all and they kind of make me gag. I always go back to the biotene and the oral balance. I wish they would come up with something better. I have so many issues with my teeth. I just finished getting another round of fillings and crowns and they last a little while and then they break. So frustrating. Does anyone have any helpful hints on the dental horrors. I really am so tired of it.
65f dx 7/95 scc poorly differentiated r post pharngeal Laser surg
7/96 reocur l post wall 8wks IMRT 5d/wk
freq check all clear ca
97 approx dx atypical mycobacteria lungs picc line many antibiotics still pos cultures
cough
dysphagia
dry mouth
many dental issues
osteoporosis many fxs
Poor appetite
| | | | | Joined: Sep 2012 Posts: 64 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 64 | My feelings, too. I just tried them. From reviews on Amazon and elsewhere I'd say that 60% of users are satisfied with them, 40% aren't. They worked, some, but not all night and no better than frequent uses of Biotene mist which is what I used before and since.
I'd say it's worth a try for anyone.
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
| | | | | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2011 Posts: 168 | I just tried these patches and liked them. The relief they offer lasts longer than Biotene gel. I got them online and need to get some more. Wish I could buy them locally.
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | When buying online, Amazon is a great site to buy from. If you use the Amazon button OCF will get a 6% kickback from any purchase on that visit. Please pass this around to your friends and family especially with holiday shopping right around the corner.
The OCF home page listing all the support forums has a green Amazon banner on top. Click on it to take you to Amazon. OCF only gets the 6% IF YOU ENTER AMAZON EACH TIME THROUGH THE OCF LINK. Most people, once they get there the first time, bookmark that page (which will have the OCF Amazon unique code in the url address) and save it to their browser bar - you can rename it just Amazon once you have done that. Then if you use that bookmark to always go to Amazon, you will actually be entering through OCF's identifier without coming to the badge on the forum to enter. A simple one time way to help the foundation significantly without spending an extra cent. | | | | | Joined: Sep 2012 Posts: 64 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 64 | I just tried them again, using a different method: I put one on each side of my mouth between cheek and gum, the result was a thick, sticky, "saliva", more like phlegm, that was somewhat uncomfortable. I had to get up once to wash off my lips that were sticking together. However, I made it through the night, and beyond, with NO dry mouth so I think that it is definitely worth it.
There is a competitor product, Xylimelt patches, which I have ordered. I'll review and compare them once I've tried them.
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
| | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Sep 2012 Posts: 381 | Looking forward to Lefty's reviews. Biotene gel has worked best for me with the mouthwash, but it is not as effective as when I first started using it, so I think it would be good to have something to trade off with so as not to build up a tolerance.
I have the sticky saliva issue too from time to time, and keep a towel in bed to deal with that, as well as the ridiculous drool before the dry mouth hits. Honesty, like it wasn't bad enough getting cancer, what kind of lame ass side effects are these????
Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | You crack me up!!! Everytime I read your posts I can just picture this spirited young woman!!
Love your gift of positivity...is that a word???
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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