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Joined: Oct 2011
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"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Oct 2011
Posts: 805
Don't be too quick to rule out more aggressive treatment. You want to giive it the best shot the first time around. Just my opinion though.
Thanks for keeping in touch!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Oct 2008
Posts: 3
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Joined: Oct 2008
Posts: 3
I wish you the best. You can and will get through this. I was diagnosed with BOT/SCC in 1999. I refused to accept my doctor's opinion which included surgery, etc. I did some alternative items that worked for a while but in 2002, I had to make a decision. But I had found of a less invasive treatment by that time, no surgery. 10 years later, still no problems.

Thanks,
Mac Caldwell
Paris, TN

Lady1
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Lady1
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J McCaffrey ENT and J Caudell Rad Onc. Have not seen MO yet. Any advice where to park? Don't like valet parking.

Joined: Apr 2009
Posts: 329
Platinum Member (300+ posts)
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Joined: Apr 2009
Posts: 329
No place other than valet parking. Why not like it, drop off and pick up right at the front door. The people parking your car are college student. The tips they get help them with their college expenses. I love it.


SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.

CT Scan 9/11 clean, CT Scan 9/12 clean


Moffitt Cancer Center in Tampa, FL. A+.

My hometown Lockport, NY.



Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Yep no other place except across the street and as Connie says it only costs you tips. There re 3 places to drop your car off, radiation, chemo and Main depending upon where you are headed that day. Judy is great but I don't know Caudell. When do the Tx's start? When it a MO visit planned?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Lady1
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Lady1
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We are waiting to find out when treatment starts. They tell us within 1 1/2 to 2 weeks after the simulation and he had the simulation this past Wed. He sees MO Tuesday. So end of next week or the following week. Anxious to get things going. He was dx 10/1 but mass noticed in Feb so want to get started. My husband has a Porsche so he's not too fond of college students driving it...that is why I was asking about parking.

Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Welcome to our home. The advice you were given here is all the best. I look like a Gpber but am stil alive. Keep the positive attitude and you will be fine. treatments are tough but nothing you can't handle. Come out swingin.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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