I just had to say something about a peg tube. What you are trying to use is called lopez valve. Usually Intervetion Radiologist puts in the tube. It stops there. But when you are back in the hospital the nurses must have put a lopez valve on for you. It's a very nice valve and works great if they would take time to show you how to use it properly. I luked out and they took the time to show me how to use the pump at night and the bolus during the day. All those functions go through the lopez valve. I would recommend you talking to a nurse in Intervention radiology before talking to your Interventional Radioloist. He or she won't know what it is. Now for cap falling off. It usually does that when you have turned the valve in the wrong position to close it off from feeding yourself. The best way to make sure it doesn't fall of is when you are looking down at the valve it looks like t as a cross. The off position is when the longest part is down and it looks like a cross. The orange cap is on the left. I have had many accidents by having not turned the valve back to that position or someone has interrupted me. I have had mine for quite awhile. I actually did it today because I wasn't paying attention. I hope this helped and if not I could be talking about something different. Take care!

Hi Kerri, Hang on in there, as the others say it will get better but you need to get through this bad stage first. If you can get a pump for overnight feeds that go in at a nice slow rate, it should really help. That will free you up during the day to focus more on taking what you can during the day.

Hang in there lady ! I know its so crappy going through the treatment. It really breaks you down. I'm so sorry you are going through it. Soon you will be on the upward path where you start to feel better and better everyday and it will be euphoric!

Wishing you weren't feeling so bad and hope things improve soon.

XOXOXO Kate

I had my PEG replaced today. It seems that the one that I had migrated too far into the duodenum and they think that's why I was getting sick with the feeds. I hope they are right because my stomach still doesn't feel all that great, but I suppose that could be due to the procedure earlier today. They replaced it with a low profile peg called the" Mic-Key". I've done one feed with it and so far, so good. I'll keep you posted.

Kerri I'm so sorry to hear you're struggling. Sure sounds like you're right in the thick of it! Just try to remember that each day is a day closer to being done. When my mom was going through treatments, when it started getting really tough that is the only way we could help her through the day. Keep fighting and rest when you need to! And of course, keep us updated.

Thinking of you!