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#156084 - 10/11/12 06:39 PM Dizzy spells
ESikon Offline
Platinum Member (300+ posts)

Registered: 06/22/09
Posts: 440
Loc: Texas
Recently I have been having some dizzy spells. Very apparent when I get up from a sitting or laying down position that I can't focus my eyes and feel like I will blackout. Last night I fell, I got up from sitting and began to walk (took 2-3 steps) and bam I hit the floor! I had to lay there for a few minutes so the room would stop spinning.

I use to have minor dizzy spells shortly after treatment and knew it was because I was dehydrated thus affecting my blood pressure. I hadn't suffer from dizziness for quite some time but recently had to change my thyroid dosage. I'm wondering if this is a contributing factor or if I should be concerned about something else.

I know I need to just go get checked and I will but wanted to see if anyone else has experienced these episodes?

Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
OCF Regional Coordinator of San Antonio Walk

#156086 - 10/11/12 08:07 PM Re: Dizzy spells [Re: ESikon]
Maria Online   content
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 864
Loc: Ohio
My husband's bp is pretty low and he gets dizzy if he gets up too quickly. PLEASE be careful and no more falling over! Have you made your appointment to get checked out (that's the mom in me talking!).
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

#156092 - 10/11/12 09:55 PM Re: Dizzy spells [Re: ESikon]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8309
Loc: Gulfport, Florida
I have just started having some dizzy moments when I turn my head certain ways and when I get out of bed and my PCP has done blood work, etc and has told me it's likely that some crystals (sounds like Star Wars stuff) have dislodged in my inner ear and I need to have them repositioned. He says it's quite common for OLD FARTS and there are some manipuative procedures that are very effective in repositioning them.

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 14, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

#156118 - 10/12/12 12:48 AM Re: Dizzy spells [Re: ESikon]
debandbill Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/12/07
Posts: 939
Loc: Punta Gorda, Florida
Bill has the same issues with vertigo..blacking out...etc., but he is an Old Fart like David wink He has been seeing a balance expert and doing therapy to help with it. He says it has helped.

You are pretty young to be having this but with all your treatments/surgery, who knows. I would definitely be suspicious of any med change but you are on the mark with seeing your physician (I your spare time.)

Sure hope you can get to the bottom of this...its scary to drive or go anywhere when you think you might pass out or fall at any time.

Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

#156124 - 10/12/12 02:36 AM Re: Dizzy spells [Re: ESikon]
ESikon Offline
Platinum Member (300+ posts)

Registered: 06/22/09
Posts: 440
Loc: Texas
I do have a perforated eardrum for the past 6 months, the only way to close it is through surgery and I opted out for now. One more surgery, no thanks!

This is the first time I've had dizzy spells since the perforation.

I'm ordered to call the dr tomorrow so hopefully I will find out what the culprit may be. I haven't had the spells when driving but my husband is worried that it could happen.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
OCF Regional Coordinator of San Antonio Walk

#156134 - 10/12/12 07:12 AM Re: Dizzy spells [Re: ESikon]
Shauneen Offline
"OCF Canuck"
Supporting Member (50+ posts)

Registered: 10/03/11
Posts: 66
Loc: Calgary, Alberta
I haven't had dizzy spells or vision problems, but I didn't have chemo. I'm a year out from radiation.
In the last month:

Fell forward right onto my nose when trying to sit down on the couch with my hands full.
Took out a table after 2 steps trying to answer the phone when it awakened me from a nap.
Fell off the computer chair when the cat tried to bat my glasses off my face.
Took out another table and a chair getting up from the floor after working on my PC.

I had to laugh (so did my husband) but I'm going for a full physical next week!

Edited by Shauneen (10/12/12 07:13 AM)
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.

#156142 - 10/12/12 12:36 PM Re: Dizzy spells [Re: ESikon]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8314
Loc: PA
Elizabeth, please get yourself checked out and let us know what the doc says. Hows your blood pressure? Mine still runs really low and I get dizzy from that sometimes. Have never fallen though.

Best wishes!
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

#156292 - 10/15/12 02:08 PM Re: Dizzy spells [Re: ESikon]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4840
Loc: Toronto canada
Ear issues can very much cause dizziness !!! Meneres disease is all about the inner ear, and causes supreme dizziness. I would have your carotid checked, and iron levels. smile hugs! (sorry on the ear drum thing that's gotta hurt! )
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan


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