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#155488 - 10/02/12 03:47 PM Nightime dry mouth
LeftyS7 Offline
Supporting Member (50+ posts)

Registered: 09/30/12
Posts: 64
Loc: Reno, NV
Please excuse me if there is a thread on this elsewhere. If there is, couldn't find it.

I am five weeks post radiation treatment and dealing with dry mouth. My Dr. prescribed Neutrasal which works O.K. during the day but is no help at night. I also drink "Traditional Medicinals Organic Throat Coat" tea which my ENT recommended. It does a wonderful job of lubricating mouth and throat but is no help at night. At night I wake up every hour, hour and a half, or two hours with extreme dry mouth. Drinking water, I learned and my Dr confirmed, doesn't really help dry mouth although it does help soften phlegm. It does make one urinate which means that I need to get up for that, so I limit my water intake and swish water in my mouth to moisten it. This has limited affect.

Is there anyway to reduce dry mouth at night so that I can get a decent night's sleep?

Thanks
_________________________
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13

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#155492 - 10/02/12 06:00 PM Re: Nightime dry mouth [Re: LeftyS7]
Mack Offline
Member

Registered: 10/21/08
Posts: 3
Loc: Tennessee
Well this is not a refreshing reply but I'm ten years out on BOT cancer and still have problems with dry mouth. It's better but still not good. I don't drink as much water as before. Whatever you do stay close to your dentist (my suggestion only), I've had a time keeping teeth in order. I never took any of the prescribed meds for dry mouth just drank water.
good luck, you'll make it!

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#155493 - 10/02/12 06:11 PM Re: Nightime dry mouth [Re: LeftyS7]
Deejer47 Offline
"Above & Beyond" Member (500+ posts)

Registered: 09/16/08
Posts: 702
Loc: Chico, Ca.
Hi Lefty. This is pretty much a universal problem for us who have had radiation for H&N Cancer. I brush with Prevident 5000 Dry Mouth toothepaste, available from dentist then spray with Biotene dry mouth spray. This way I only wake up 1 or 2 times, rinse with water, spray Biotene and back to bed. I guess we can expect this to go on for the duration. Hope this helps.


Edited by Deejer47 (10/02/12 06:12 PM)
_________________________
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.

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#155496 - 10/02/12 06:47 PM Re: Nightime dry mouth [Re: LeftyS7]
David2 Online   content
Patient Advocate (1000+ posts)

Registered: 07/12/09
Posts: 1195
Loc: Los Angeles
Lefty, ditto to the others. There's also a product called "Rain" from a company called Xlear. It's a xylitol-based spray and you might try it, keep it by your bed. Pretty sweet actually but maybe it'll help. Biotene also makes a gel. I don't particularly like it, but you could give it a shot. Since you're in a dry climate like mine you also might consider buying a humidifier if you don't already have one.

Staying close to your dentist is also a great idea, btw.

Let us know how you're getting on, ok?
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage II TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | PET-CTs clear through 1/13!

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#155503 - 10/02/12 07:43 PM Re: Nightime dry mouth [Re: LeftyS7]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 7931
Loc: PA
Try keeping one of the above mentioned sprays by your bed and instead of getting up try just giving a quick squirt or 2 then you can go back to sleep right away. I get up frequently as I use a nighttime feeding machine for my feeding tube, so whenever I get up I rinse my mouth out with water instead of drinking it. I sure dont need any more liquids at night to make me get up even more. I should also give the spray a try. Im 5 years post rads and it still bothers me a little at night but it is alot better than it was when I was only a few weeks out.

_________________________
Christine

SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 rad end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
total of 185 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo hospital extended stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#155513 - 10/02/12 09:56 PM Re: Nightime dry mouth [Re: LeftyS7]
EzJim Offline
Patient Advocate (old timer, 2000 posts)

Registered: 06/12/07
Posts: 5260
Loc: Mingo Jct., Ohio
I have dry mouth 24/7. I use all of the meds mentioned but they only last about 30 minutes. At nite I use biotene Oral Balance, then wash my mouth with magic mouthwash followed by Biotene Oral Rinse mouth wash, which I rub on my little bit of tongue, gums , roof of my mouth. It prevents severe dryness for a couple of hours. I'm still up every hour for pee time but at least I get to sleep a little at a time. I hope you find something that works even if it's a part time aide.
_________________________
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April

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#155579 - 10/03/12 07:59 PM Re: Nightime dry mouth [Re: LeftyS7]
LeftyS7 Offline
Supporting Member (50+ posts)

Registered: 09/30/12
Posts: 64
Loc: Reno, NV
Thanks, all. I had been using a humidifier and started using the "Biotene" spray last night. It helped a lot. I'd used the "Biotene" spray during the day but saw no advantage in it. I've got "Oasis" and "Rain" on order and will experiment with them, too.
_________________________
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13

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#155594 - 10/03/12 11:19 PM Re: Nightime dry mouth [Re: LeftyS7]
PaulB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 07/06/12
Posts: 2177
Loc: NYC
Saliva production slows down at night, which is why people wake up with dry mouth, bad breath from the reduction of Salivor, and bacteria growth. I used biotene dry mouth products, dry mouth gel at night, along with water bedside. Here is an odd one, but heard some tape thier mouth closed, so moisture doesn't escape as fast..see your dr for that one. I never did it.
_________________________
10/09 T1N2bM0 Tonsil 48
11/09 Taxotere Cisplatin 5-FU
07/10 NED
09/10 Recurrence
02/11 35 IMRT 70Gy
06/11 30 HBO
07/11 NED
09/11 Recurrence
10/11 Radical Neck Dissection
02/12 NED
04/12 Recurrence
05/12 Recurrence
06/12 Selective Neck Dissection
07/12 Recurrence
08/12 Radical Neck Dissection +HD-IORT 12Gy Pec flap
10/12 25 IMRT 50Gy Taxo, Erbitux
02/13 NED
08/13 Recurrence
10/13 Selective Neck Dissection
10/13 RND Carotid, Vagus, assesory nerve removed +HD-IORT 10Gy
12/13 25 Proton Therapy 50Gy +6 Carbo






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#155596 - 10/03/12 11:25 PM Re: Nightime dry mouth [Re: LeftyS7]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8029
Loc: Gulfport, Florida
Taping the mouth shut is interesting. Maybe I'll test that with my wife during daylight first?
_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT w/ 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 w/ concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week. Now doing 12 Spin classes and 60 outdoor miles per week. Nov 2013 completed Hilly Century ride for Cancer, 104 miles, and took 1st Place in my age group. April 2014, Spun for 9 straight hours to raise $$ for YMCA's Livestrong Program.

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#155600 - 10/03/12 11:53 PM Re: Nightime dry mouth [Re: davidcpa]
PaulB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 07/06/12
Posts: 2177
Loc: NYC
Lol.
_________________________
10/09 T1N2bM0 Tonsil 48
11/09 Taxotere Cisplatin 5-FU
07/10 NED
09/10 Recurrence
02/11 35 IMRT 70Gy
06/11 30 HBO
07/11 NED
09/11 Recurrence
10/11 Radical Neck Dissection
02/12 NED
04/12 Recurrence
05/12 Recurrence
06/12 Selective Neck Dissection
07/12 Recurrence
08/12 Radical Neck Dissection +HD-IORT 12Gy Pec flap
10/12 25 IMRT 50Gy Taxo, Erbitux
02/13 NED
08/13 Recurrence
10/13 Selective Neck Dissection
10/13 RND Carotid, Vagus, assesory nerve removed +HD-IORT 10Gy
12/13 25 Proton Therapy 50Gy +6 Carbo






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