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#154556 - 09/15/12 04:33 AM No insurance, oral cancer and denied by Medicaid
AggieCwgrl Offline

Registered: 09/15/12
Posts: 2
Loc: Missouri city, Texas
Howdy all,
I'm new here but I'm desperately seeking answers and help. My uncle was diagnosed with oral cancer. He went to the dentist finally once we saved up enough money to get him seen to remove a tooth that has been bothering him. The dentist said he couldn't remove the tooth because it had a cancerous tumor growing under it. My uncle lives in a small town named yoakum, tx and we live on the outskirts of Houston. We have tried everything to get him help and insurance and we have been turned down everywhere. They won't even give him Medicaid. He is disabled and hasn't been able to work for a long time so no one will help us. Even the trials won't take a chance on him. They say without treatment he has 6 months or less. I have watched my uncle deteriorate and I can not just stand here and let him die without a fight, so please any info or help or tips or anything will be greatly appreciated. His mom (my grandma) passed away last year and we still haven't recovered or finished paying for those expenses.

#154557 - 09/15/12 11:12 AM Re: No insurance, oral cancer and denied by Medicaid [Re: AggieCwgrl]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 7929
Loc: PA
Only thru a biopsy can a determination of oral cancer be made. Visually a medical professional can suspect it is cancer but they cant know for certain unless a biopsy was done. Also a dentist wouldnt usually know a persons lifespan.

I would try your local county welfare agency as well as calling all the major hospitals. Your uncle's best chance would be at a large cancer center. Huston has MD Anderson which is one of the top ones in the country. Call and talk with them about his situation. Many places have financial aid departments which will work with patients. Even if he has to agree to pay $20 a month until its paid off its worth it.

Here is a link for the top cancer centers.

Good luck!!!!

Cancer Centers

SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 rad end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
total of 185 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo hospital extended stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

#154560 - 09/15/12 12:24 PM Re: No insurance, oral cancer and denied by Medicaid [Re: AggieCwgrl]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8028
Loc: Gulfport, Florida
Here in Fl I regularly get people with no money/no insurance seen and cared for by Moffitt with the assistance of the local County's welfare agency. I agree with Christine, start with MD Anderson and ASAP.

Age 58 at Dx, HPV16+ SCC, Stage IV BOT w/ 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 w/ concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week. Now doing 12 Spin classes and 60 outdoor miles per week. Nov 2013 completed Hilly Century ride for Cancer, 104 miles, and took 1st Place in my age group. April 2014, Spun for 9 straight hours to raise $$ for YMCA's Livestrong Program.

#154578 - 09/16/12 12:41 AM Re: No insurance, oral cancer and denied by Medicaid [Re: AggieCwgrl]
AggieCwgrl Offline

Registered: 09/15/12
Posts: 2
Loc: Missouri city, Texas
Sorry I guess I misworded some things, the dentist said he couldn't pull the tooth because of the tumor and he had to go to several doctor visits and take some test and such and after that is when we found out it was cancer.

Thank you for the advice. smile we are doing the best we can and trying to contact everyone.

#154825 - 09/21/12 03:20 PM Re: No insurance, oral cancer and denied by Medicaid [Re: AggieCwgrl]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Is he on Social security disability? Ron has been on since 2007 and has had Medicaid/Medicare ever since. I got him on right away and I must have been a lucky one that it was so easy and I had no problems at all. I went and did it myself first went to Social Security office when Ron was in hospital right after he came out of his coma and than went to welfare agency and got him on that too. He had no insurance either and I just took him right to Cleveland Clinic emergency when he had his Non Hodgkins Lymphoma and they have been taking care of him ever since Jan 13 2008!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

#155867 - 10/08/12 10:40 PM Re: No insurance, oral cancer and denied by Medicaid [Re: AggieCwgrl]
Ina Offline
Senior Member (100+ posts)

Registered: 10/05/12
Posts: 141
Loc: OCF East Coast USA
I am so sorry to hear about your uncle's situation. We are also faced with the same problem. We just paid off our personal loan from her last surgery and now my husband and siblings got another personal loan to fund their mother's surgery 10/10/12.

Sometimes decisions are made because of the lack of funds, and that is the most painful reality for your family and our family.

We hope and pray that you will get financial help from different charitable organizations. God bless and wish the best for him and your entire family.
Ina D-inlaw to Joyce age 74. Tongue CA 01/2010; PT Glossectomy. SCC Gums 08/2012. Lower Mandible T4N0M0. PT mandible resection 10/2012. 3 Cisplatin chemo 11/12 to 1/9/13. 04/29 facial lesions/tumor. Peg tube 05/2013. 06/06 - 7/25 Rad 35 sets & Erbitux Chemo 16. No longer on treatment.


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