| Joined: Sep 2012 Posts: 13 Member | OP Member Joined: Sep 2012 Posts: 13 | Anne, thank you! Just curious, did your son have any symptoms to go along with the sore? Its great that hes doing fine, and that you come here to support others! | | | | Joined: Sep 2012 Posts: 13 Member | OP Member Joined: Sep 2012 Posts: 13 | Oh and i live in the Columbus area! Thanks for the latest posts. Ill check back after the biopsy. I think todays appointment is just the initial screening or whatever, as required by my insurance. Im not sure if the actual procedure is being performed. | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Good luck today and push to have the biopsy done ASAP. Take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2012 Posts: 214 Likes: 1 | Another buckeye here. I agree get the biopsy ASAP. Speed means a lot. As if it nothing, no more worries. If is a problem, you found it as fast a possible. But I'm pulling for nothing.
Go buckeye.
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Hockey Dad, What part of Ohio are you living? I live in NW Ohio and was treated at the North Coast Cancer Campus in Sandusky, which is a branch of the Cleveland Clinic.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2012 Posts: 214 Likes: 1 | Madison, 30 miles east of Cleveland. The Siedmen center has a campus in Mentor. Its only 12 miles from my home. And it is between home and work. I am not sure if the Clinic has a campus east of the main capus in cleveland.
I am tring to get opinions from both ASAP.
I have my pet scan tomorrow at UH Siedmen. I was asked to get a cd of the pet scan. The cleveland clinic wants a copy. I am not sure how to get this done.
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | Just tell them when they do it that you need a copy. They should be able to get you the disk pretty easily. The report is what takes a bit. You might want to just get it all together, but see what they say! Good luck tomorrow! Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | DB7 - To answer your question, my son did have some pain associated with the sore that grew to a lump about the size of a small walnut. The doctor told him the reason there was pain is that the cancer was wrapped around a nerve and that most people do not experience pain with his type of cancer (squamous cell or SCC). Good luck tomorrow and stay in touch with us.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Sep 2012 Posts: 13 Member | OP Member Joined: Sep 2012 Posts: 13 | Ok i had my appointment and it went well. He commented on the size of the white patch and said that he agreed that a biopsy needed done. I got it set up for September 18th in the afternoon. He too asked me if i had any other symptoms. Not sure what symptoms i should be watching for. Doing my best not to do the internet searching deal, choosing rather to rely off the information on this site, and from you all. Ill keep you posted. | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | It's good you have your biopsy set up. Maybe you could see if they would reschedule a little sooner? For me, waiting even one day was excruciatingly stressful. You could ask them to let you know if they have a cancellation and can get you in sooner. If your stress level is high, tell them about that, too. When my son was scheduled for an appointment with the ENT for two weeks away, I was in such an anxious state I could barely talk on the phone. So when my ex-daughter-in-law called to ask how Paul was doing, and I told her, she volunteered to call the doctor to move up the appointment. That was on a Friday and we got the appointment for the following Monday! (She's a good talker) My son was not too happy about his ex-wife being involved but I was happy. When you see the doctor, bring someone with you if you can. THey can help you remember what the doctor said and ask questions of their own. Make a list of your questions. I've even faxed the doctor my questions a had of time so they could be ready with answers in case they have to look them up.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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