| | Joined: Sep 2012 Posts: 13 Member | OP  Member
Joined: Sep 2012 Posts: 13 | Hello all. I'm new here, and glad to have found this site. I'm a 35 year old active male. I had a really sore tongue a few months ago that lasted a few days, kind of like a canker sore. It went away so I ignored it. The problem is that the white patch associated with the pain stayed. I also noticed slight sensitivity to tooth pastes and similar things. I finally decided that it was weird that this patch hadn't gone away so I scheduled an appointment. The doctor set me up with a biopsy. He told me he was concerned because he felt a rough part in the middle, and was pretty certain that it would come back as "pre cancerous". Of course at my age and how health conscious I have been, this kind of blew me away. I'm still cconfused I guess. Although I've been doing some reading and see now that it is affecting younger people. Ugh. Anyway, any thoughts on what the doctor said? I don't have my biopsy until Tuesday the 4th, and I've been doing pretty good at staying positive, at least outwardly, and have been staying busy. If its been here a few months, at least that I've noticed, I guess I'm worried that its not just "pre cancerous", but full fledged cancer. Any thoughts/opinions would be appreciated, and I definitely plan on sticking around and giving updates! Thanks in advance. | | | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2012 Posts: 214 Likes: 1 | I am also new here and sure hope it is something simple. But what I have been told here is "it not cancer until the doc says it is". My sugestion find a ENT and get is biopsied ASAP. The more you know the better the out come.
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hockey dad is right - a biopsy is the only way to know for sure. It is affecting younger healthy people I'm not as young as you but read my info at the bottom of this post... I was darn healthy - your de. Sounds great. Most would have blown it off. Good luck and I do hope it's nothing,
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Only thru a biopsy will you know for sure what you are dealing with. I know its not easy to deal with waiting but you are doing the right thing by staying busy. A sore could be all kinds of things besides cancer. Hope it turns out to be nothing serious!
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2012 Posts: 13 Member | | OP Member
Joined: Sep 2012 Posts: 13 | I hope it turns out to be nothing either. I just know that after the doc looked at it, he seemed pretty certain that it was cancerous. Well he used the term "pre cancerous", but we'll see I guess. My biopsy appointment is tomorrow morning, but of course then I'll have the other week or so of waiting for the results...lol. Anyway, I appreciate the responses. Its nice to know there are others out there to help with answers. | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | We had a 14 yr old girl in here that was really scared. That kid beat it and must be living a hppy life now. She was a toughy. Age has no meaning at all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | DB,
I know your nervous we all were when we played the waiting game. I hope it turns out to be nothing too, but IF it is cancer please go to a Cancer Center. They are up on the latest in technology believe me they are the best.
Hope everything turns out in your favor, keep us updated.
Take care,
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi DB - you've come to the right place for lots of the best and very latest accurate info, plus some very compassionate and helpful people to help you through the waiting and afterwards IF it is cancer. My son was only 33 when he had a sore under his tongue and he put off seeing a doctor about it for several months but he is doing fine now almost 6 years later. When you doctor said "pre-cancerous" it probably means that IF it is cancer that it is in a very early stage. Whatever the results of the biopsy, you will have all the support you want with everyone here. The waiting is absolutely the worst so it's good you have been keeping busy. Hope everything goes well. Let us know how the biopsy goes tomorrow.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Hi, DB, where in Ohio are you? I hope that your biopsy will be just fine, but if not, you have come to the best place in the world for support and advice. Good luck with your biopsy, and keep us informed.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Geez, I didn't even notice DB7 was another of us Buckeyes. I'm praying you are going to get good news. Too many of us get bad. Welcome to our home with the greatest family in times of stress.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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