| Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | That is good news, at least I am told it is. How you holding up? I get my Peg tube and port tomorrow, but still no Big problems eating yet. Just want to be prepared. Taste and saliva down somewhat. I think this dry mouth is going to be something.... But I see that some people had saliva come back some what... later
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | Oh, and ask about what to do about constipation. That hit me first and was/is the worse ever had... The chemo hasn't made be very nauseated but they said not to take laxatives, just stool softeners and then they suggest prune juice... FYI
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Greek yogurt with probiotics...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Aug 2012 Posts: 214 Likes: 1 | Thank everyone, you are all Angles. I just about recovered from the find Waldo exercise in my mouth Wednesday. The slits on the side of the tongue seem to take the longest to heal. Right now a have a little pressure in my neck but it does not hurt to swollow. I have resorted to sucking on Jolly Rancher all day a work. I also let a few more people at work know my condition. That is not a fun thing to discuss.
Tomorrow (Wed) I meet my RO and MO at UH Seidmen Cancer Center. I am a little scared, but it time to stop the test and wait game, and start the fix. I am hoping they do something tomorrow or at least not make me wait until Monday.
Last edited by Hockeydad; 09-18-2012 05:17 PM.
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | Good luck tomorrow. Let us know!!
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Hope everything goes just the way it's supposed to today! Get back to us and let us know how it goes.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Aug 2012 Posts: 214 Likes: 1 | Hi Everyone. Met with MO and RO today. DX St4a TXN2aM0. MO said T1, RO said TX. They said it really does not matter. Both wanted to put me in Trials. HPV+16 43yr health male. But after the physical and exam the cancer was not easily visable so I am not a canidate. Friday 21 I get my Mask, Oct 1 treatment. 3 big Bags Cisplatin and 35 IMRT with guidance. Since the primary finding sugery last week my energy levels are not quite where they were before. It this cancer or just OLD?
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | You are Not Old! I would think it is combo of Cancer and Anxiety and Stress. Sounds like you are doing ok to me.
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | It's true, anxiety and stress can make anyone feel old. And you are NOT old. You've done so well so far and have every reason for a very successful fight to beat this cancer beast! Anyone with a wonderful wife and two kids can't be old!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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