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Hockeydad #154505 09-13-2012 06:01 PM
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That is good news, at least I am told it is. How you holding up?
I get my Peg tube and port tomorrow, but still no Big problems eating yet. Just want to be prepared.
Taste and saliva down somewhat. I think this dry mouth is going to be something.... But I see that some people had saliva come back some what...
later


large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
Hockeydad #154508 09-13-2012 07:28 PM
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Oh, and ask about what to do about constipation. That hit me first and was/is the worse ever had... The chemo hasn't made be very nauseated but they said not to take laxatives, just stool softeners and then they suggest prune juice... FYI


large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
Hockeydad #154510 09-13-2012 08:21 PM
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Greek yogurt with probiotics... smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Hockeydad #154671 09-18-2012 05:16 PM
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Thank everyone, you are all Angles. I just about recovered from the find Waldo exercise in my mouth Wednesday. The slits on the side of the tongue seem to take the longest to heal. Right now a have a little pressure in my neck but it does not hurt to swollow. I have resorted to sucking on Jolly Rancher all day a work. I also let a few more people at work know my condition. That is not a fun thing to discuss.

Tomorrow (Wed) I meet my RO and MO at UH Seidmen Cancer Center. I am a little scared, but it time to stop the test and wait game, and start the fix. I am hoping they do something tomorrow or at least not make me wait until Monday.

Last edited by Hockeydad; 09-18-2012 05:17 PM.

Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
Hockeydad #154675 09-18-2012 06:52 PM
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Good luck tomorrow. Let us know!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Hockeydad #154686 09-19-2012 02:37 AM
Joined: Nov 2006
Posts: 2,671
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Hope everything goes just the way it's supposed to today! Get back to us and let us know how it goes.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Hockeydad #154689 09-19-2012 05:21 AM
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"OCF Canuck"
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Ditto! Good luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Hockeydad #154743 09-19-2012 05:40 PM
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Hi Everyone.

Met with MO and RO today. DX St4a TXN2aM0. MO said T1, RO said TX. They said it really does not matter. Both wanted to put me in Trials. HPV+16 43yr health male. But after the physical and exam the cancer was not easily visable so I am not a canidate.

Friday 21 I get my Mask, Oct 1 treatment. 3 big Bags Cisplatin and 35 IMRT with guidance.

Since the primary finding sugery last week my energy levels are not quite where they were before. It this cancer or just OLD?


Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
Hockeydad #154746 09-19-2012 06:34 PM
Joined: Aug 2012
Posts: 71
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You are Not Old! I would think it is combo of Cancer and Anxiety and Stress. Sounds like you are doing ok to me.


large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
Hockeydad #154748 09-19-2012 07:40 PM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Joined: Nov 2006
Posts: 2,671
It's true, anxiety and stress can make anyone feel old. And you are NOT old. You've done so well so far and have every reason for a very successful fight to beat this cancer beast! Anyone with a wonderful wife and two kids can't be old!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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