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Joined: May 2011
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Hi Sai, please feel free to post absolutely anything. Everyone here is affected by cancer in someway and is just trying to share their experience and help others in whatever possible means.

As discussed over phone, go for Fentanyl patch and also discuss with a good oncologist rather than a general physician about the situation.

You can read about Last days of life here: http://www.cancer.gov/cancertopics/pdq/supportivecare/lasthours/patient


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
Joined: Jun 2007
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Make sure to follow the directions exactly with the fentanyl patch. No long hot baths or showers, do not ever bend, tear, cut or fold the patch. These things can cause the patch to distribute too much of the medication.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Hi Eshwar/Christine,

The doctors we are consulting are suggesting only one thing, i.e; go with dressing of the exposed part near chin area and try to feed with the liquids if he is interested to take.

They are saying nothing much can be done untill and unless the patient is interested to take the treatment. They are also saying hospitalization can be done if he is going into unconsious state.

Please advice on this..

Thanks,
Sai Krishna


Thanks for your support & care,
Sai Krishna
Visakhapatnam,Andhra Pradesh,INDIA
Joined: Jun 2007
Posts: 10,507
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Im so sorry that its so difficult for you to navigate the medical system there. How frustrating this must be for you! I guess you cant force a patient to seek treatment.

As always I wish you all the best with your Grandpa.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: May 2011
Posts: 287
Gold Member (200+ posts)
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Joined: May 2011
Posts: 287
Hi Sai, did you speak to doctor about Fentanyl Patch? That will provide your grandpa sufficient relief and willingness to proceed with food and treatment.

As a caregiver, you have to fight for the patient.

Sometimes, doctors here in India are such a disappointment!


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
Joined: Aug 2012
Posts: 12
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Hi Eshwar/Christine,

I am on my way to my home for 5 days, so I would be able to ask about the fentanyl patch. I will also tell them all the current situation and let you know about the happenings.

I will also check on the options we have for emergency hospitalization and the pain medications available.

Thanks,
Sai Krishna


Thanks for your support & care,
Sai Krishna
Visakhapatnam,Andhra Pradesh,INDIA
Joined: Aug 2012
Posts: 12
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Posts: 12
Hi All,

Still waiting for any appointment on Wednesday with the Oncologist to talk about the Fentanyl Patch.

I would also like to know if this is suggested in patients with any body mass left. I'm asking because he has stopped fluids from past 3 days and doesn't look like will be able to cope with any strong medication which may have side affects even.

Do suggest if considering Fentanyl Patch in end of the days will help in any way !!

Just rushing to hospital now.

Thanks,
Sai Krishna


Thanks for your support & care,
Sai Krishna
Visakhapatnam,Andhra Pradesh,INDIA
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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If your grandfather is in pain, he needs to have it controlled. In my opinion the fentanyl patch should help. It will take about 24 hours from the time its place on him to begin to work. It gets changed every 72 hours which makes it very simple. Always follow the directions exactly with no long hot showers or baths and never fold, cut, bend or rip the patch. Ask also for some other pain meds for any breakthru pain for when he is having a bad day managing the pain. The patch comes in several strengths 12.5, 25, 50 and 100mg. I would guess that he should start out with a 50mg patch if his pain is severe. I hope this will help him.

Best wishes, Sai. You are a very good grandchild.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Aug 2012
Posts: 12
Member
OP Offline
Member

Joined: Aug 2012
Posts: 12
Hi All,

Its a sad day in my entire life when my grandpa expired due to cardiac arrest on 2nd Oct 3:00 PM IST. He was hospitalized on the same day to provide some essential fluids to his body which seems inevitable. But could keep him with us only for another 4 hrs.

Its a immense loss to the entire family. He has totally 4 daughters
and no sons. So all my aunts including my mother took all the care and kept him as happy as possible during his battle with the
cancer for almost 10 months after the initial diagnosis. As I am the eldest grandson performed all the rituals to rest his soul in peace.

We were never able to see him suffer during this entire 10 months tenure where he was suffering and battling cancer. How ever we are assured of the fact now, that he is no more in pain which he used to be.

Finally he is pain free and would be in our hearts forever. I can never ever forgot the care and love he has shown me or my family.

Thanks each and everyone in the forum by name for extending their support to me and my family.

Also, I would like to be a active member of this forum and would start from wherever possible to help the new members here.

Thanks,
Sai Krishna


Thanks for your support & care,
Sai Krishna
Visakhapatnam,Andhra Pradesh,INDIA
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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Hello, Sai
please accept my condolences and extend them to the rest of your family. I am glad that you were able to perform the rituals for your dear grandfather both for his sake and for yours. I know that it was a hard task for your mother and her sisters to care for him during his final illness, but it was a blessing to them to be able to do so.
I hope that you will find peace in the coming days, and remember the many wonderful times that you had together.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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