| | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | Re healing slowly: oh yes, especially as early afterwards as what you are. Doesn't that make sense?
And when I had a little fibrosis in one spot, the doc said that's nothing, leave it alone. To biopsy will only create more scar tissue, and it is nothing anyway. And you will likely have little areas where you will feel fleeting pains, etc, etc. I know you/we are supposed to be ever vigilant, but you'll drive yourself crazy if you react to everything.
You'll be able to figure it out better as you do react, see the doctor, and get the same message you just got. So, yes, relax.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jul 2012 Posts: 50 | Thanks. That's great advice.
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | WIC,
Going back to an earlier statement you made but I don't know how to caption things...WE are ALL nut jobs about this stuff!! ;o) Everyday is an adventure!! Glad all is well.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jul 2012 Posts: 50 | It's just so hard to remember how this all started and have something even remotely similar happen scares you to death. Logic turns off.
I just wish it would heal. So I can just move on and not have to worry even a little bit which feels like a lot a bit
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | Hello, after radiation, everything heals slowly. I am now 2 years and 1 month out. I still have weird aches and pains in my original tongue and weird "booboos" that appear and go away...I just have to try and wait them out, that is the hard part. The first few were tough, but i try to wait at least 2 weeks, sometimes a month before I call my oral surgeon about it. Once you are burned by cancer, it's hard not to think every little sore or pain will be again, but try to relax and stay calm. It's not cancer until a biopsy says so, and just try to wait it out and give it some time.  Hang in there!
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
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