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Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
I drank Carnation Instant Breakfast VHC which has now been replaced with Boost VHC (very high calories) which has over 500 calories in each 8 ozs with every meal. I mixed mine half n half with whole milk.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
I would ask for a peg... And maybe try making your own formulas - much as Eric does - with fresh natural foods and a protein supplement - I have a power shake every morning - though I don't use whey - I use a combination of non whey- non soy - vegan protein powders with fresh fruits organic cottage cheese, unsweetened almond milk and flax. It gives me a boost for the day and energy to boot. I was in Italy for two weeks and bought a blender there and brought my own powders, and started most days off with a toned down version of my usual shake. I have to say I missed my usual stuff - Italy has no unsweetened almond milk - though I did find a place in Florence at made their own - fruits - like bananas and berries were somewhat hard to come by and flax and cottage cheese? Not so much. I did find bananas in two cities, so I would use a bit of soy or almond milk - a banana and the protein. NOTthe same - it was like a power trek all over Italy and my energy was good, but not near what I have at home since the diet there is limited to pasta - pizza, grilled veggies (the same damn ones) rice balls, potatoes, and tomatoes and bocconcini. At one point I told my husband I would kill for some corn, beats and any veggie other than eggplant and zucchini. My point is this diet is very important.... Even if you can't get the full amount of calories, the quality of the calories is important. Junk will not feed your body. Maybe if you have to do a combination of formula and your own blended stuff. Put the formula down your tube and then make a couple of shakes for yourself and take your time drinking them throughout the day. Hugs and good luck,


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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