| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I wonder just how many of us depend on a feeding tube for everything we have to take a few times a day such as meds and nourishment. Somedays I enjoy it and other times it's a chore.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | EZJim
It's hard to get a handle on the numbers. On one tubie forum/blog, I found this guestimate
[quote]According to an article published in 2005, there were around 344,000 people using a feeding tube at home in the USA, and the article quoted a 1995 study suggesting that 120,000 patients in long-term care were using feeding tubes also. One thing we do know is that tube placements have continued to grow faster than the population, so it would be reasonable to think there might be half a million to a million people using feeding tubes in the USA alone right now.[/quote]
I'll see if I can come up with more recent numbers
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Feb 2009 Posts: 22 Member | | Member
Joined: Feb 2009 Posts: 22 | I wish I did enjoy it, it is always a chore but necessary. The question I've had it why I am never hungry or full. I must put five cans out everyday to make sure I get what I am suppose to have because I know I'd never be able to keep it straight. It does become a habit. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | You are very lucky if you dont feel hungry or full. Im always hungry every single day, rarely ever feel full.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thank you for checking this Charm. I might get hunger pangs if I didn't take in so much water all day long. But they say the more water the better. LOL Fun not to be near a bathroom sometimes tho. That I need about every hour at nite.Thanks for moving this post Christine.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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