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#125500 - 12/01/10 02:00 AM Re: Whatever happens to some posters? [Re: dribrook]  
Joined: Nov 2009
Posts: 211
tristeve Offline
Gold Member (200+ posts)
tristeve  Offline
Gold Member (200+ posts)

Joined: Nov 2009
Posts: 211
Orange County, CA
well I have been lurking around too. It has been about 134 months post tx. I am poing pretty good, back to working out but eating is still a chore. I had to stop work and have not gotten a new job since my treatment. Bad ecconomy out there. But I do count my lucky stars EVERY day, good to be on this side of the green.
all the best to everyone here

Steve


65 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




#125657 - 12/04/10 02:41 AM Re: Whatever happens to some posters? [Re: tristeve]  
Joined: Jul 2006
Posts: 388
Lostpassword Offline
Platinum Member (300+ posts)
Lostpassword  Offline
Platinum Member (300+ posts)

Joined: Jul 2006
Posts: 388
Florida
Gary - you are similar to the "Founding Fathers" only in our little war-torn country of OCF - respected, cherished, and loved for all you have given and will continue to contribute - we appreciate every minute and every word of wisdom and experience.
Thank you.


Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
#125782 - 12/07/10 03:10 AM Re: Whatever happens to some posters? [Re: dribrook]  
Joined: Oct 2016
Posts: 279
DanielleO Offline
Gold Member (200+ posts)
DanielleO  Offline
Gold Member (200+ posts)

Joined: Oct 2016
Posts: 279
Gary,

You helped me so much when I would come here doing research for my mom. You are one of the people that kept me sane going though the battle with her. I believe my mom suffers from depression as well. She never used to be negative about anything and she is negative more often than not these days. I know that her appearance bothers her although she tries not to let it bother her but I know that it does. After they routed all the veins from one side of her face to the other one side of her cheek is really sunken in. Some plastic surgeons want to inject some experimental botox type stuff in her cheek but the procedure is very pricey and she just can't see spending that kind of money on it. I do know that her quality of life is not what it used to be so I try to help be more upbeat and positive but I know that it is hard for her sometimes. Anyways just wanted to say that Gary I think you are amazing! Thanks again for everything you did helping me through my moms battle.

Dani


Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
#127212 - 01/04/11 03:27 PM Re: Whatever happens to some posters? [Re: Cookey]  
Joined: Nov 2009
Posts: 4
Op1176 Offline
Member
Op1176  Offline
Member

Joined: Nov 2009
Posts: 4
Maryland
Hey Everyone,
Happy New Year. I haven't been on this forum in a couple of months but saw this post and decided to say Hello. It's been a year since my last radiation treatment and life is good. Getting back to eating normally and being able to taste the food. I gain most of my weight back which is great. All my scans are clean and I make sure I see my doctors. Its great to see this forum helping so many others. I'll be sure to log on more to be able to pray for others.
thanks
Oprah Moore

#151205 - 06/24/12 04:03 PM Re: Whatever happens to some posters? [Re: JDR]  
Joined: Apr 2010
Posts: 45
scootersmom Offline
Contributing Member (25+ posts)
scootersmom  Offline
Contributing Member (25+ posts)

Joined: Apr 2010
Posts: 45
Delaware
Just wanted to check in and say hello. Will hit the 10 year mark all clear in October of this year. I am learning that there are so many other things that can "get us" that I'm just rolling with living and working and trying to give back what I can after my diagnosis. There are many of us who have chosen to not look back and just go forward. None of us know what tomorrow brings. Hoping that everyone is well and dealing as best as we all can through life in general - don't be afraid and I need to remember to send the Foundation a check - will do that asap. God Bless


2002 - SCC - T1N0M0 - ever vigilant
#151796 - 07/08/12 07:04 PM Re: Whatever happens to some posters? [Re: JDR]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
I have no excuse except ignorance on my part. I was coming in reading posts tho. I missed not being here make typos.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#151802 - 07/08/12 09:45 PM Re: Whatever happens to some posters? [Re: JDR]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
And we missed you Jim! My travel schedule as of late (I'm in Houston now) and computer issues have limited my responses on the boards. Where I will monitor the forums throughout the day I'm scanning for issues rather than taking time to get to know new members and plugging in. Feel a bit guilty actually smile


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#151828 - 07/09/12 01:09 PM Re: Whatever happens to some posters? [Re: JDR]  
Joined: Sep 2006
Posts: 8,311
davidcpa Offline
Administrator, Senior Patient Advocate
davidcpa  Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
I've missed you to Jim. Hoped you were hanging in there.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#152114 - 07/16/12 02:40 AM Re: Whatever happens to some posters? [Re: JDR]  
Joined: Sep 2011
Posts: 14
Bean Offline
Member
Bean  Offline
Member

Joined: Sep 2011
Posts: 14
New York
I too am still here and check in often,,I recieved so much Love and support here to get me through the scariest time in My life,,,,I still am smoking and don't deserve to be here but never will forget Those of You that got Me through it and I am in awe of all that can quit and remain smoke free. I hope that You all are Survivers and Live long healthy lives and want You all to know just how valuble You are to those who wouldn't have had the courage to find out what They had,,like Me,,,,God Bless and keep you safe, Colleen

#152119 - 07/16/12 09:56 AM Re: Whatever happens to some posters? [Re: JDR]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
Hi Colleen - Glad you checked in and it's good to hear how you were helped by coming here. You remind me of a very dear friend of mine, who made quite a difference in my and my son's life, helping us through tough times when he was surviving cancer. She was a nurse and very aware of the dangers of smoking, tried several times to quit. I've never smoked so I don't know how incredibly difficult it is to quit. But I heard the anguish in my friend's voice, a few days before she passed away, as she described how addictive it is and that it had such a hold on her. I also have another son who still smokes and when I ask how he's doing, he tells me, "I'm trying, Mom". I know from reading others' experiences that it can take many times of quitting to finally be successful. I do hope that someday you may be able to quit smoking. We want you to be safe, too. Thank you for your words of praise and blessing for those who helped you.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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