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#151600 - 07/04/12 07:02 PM Out of juice  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
Just a quick note to all my OCF friends that as a result of a derrecho here in alexandria va my entire cul de sac has been without electricity since Friday night June 29th. So no Internet no email no TV no OCF forum and zero air conditioning. With temperatures between 98 and100 each of the 5 full days without juice, my neighborhood is literally steaming since the majority of ou city got power back Monday or yesterday. Worse the usual free wi fi spots were also out of business or else so overloaded by frantic young people who had never bee offline so long that my tired old laptop could not compete with their iPhones and iPads plus nowhere near enough outlets to plug into with surprisingly polite lines to plug and recharge
Apparently they are all at the Mall today in DC to see the fireworks so I was able to snag an outlet at Barnes and Noble.
happy 4th to you all. Dominion Power says our cul de sac.is a low priority and estimated service restoration date is Saturday or Sunday only 8 or 9 days without electric
Lucky for me I grew up with no air conditioning or Internet so I tell myself I feel like a kid again. So it may be awhile before I post or read the OCF forum. I know all too well that this is great news for some but "I'll be back" so no woo woo postings please
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#151601 - 07/04/12 07:14 PM Re: Out of juice [Re: Charm2017]  
Joined: Jun 2007
Posts: 9,541
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,541
PA
Thanks for checking in Charm! I was beginning to wonder where you had been. Glad you and Bev are ok. Please be very careful in the heat wave and no AC!!!! Push extra water down that little Mickey!!!

Last year I ended up with 3 power outages. Each one was progressively worse than the one before. Last one was no power, gas, grocery stores, wi-fi within miles of my home. Luckily it was cold but not that bad that I couldnt stick it out without heat.

Hope it gets fixed very soon!!!! Check in when you can, miss you!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#151605 - 07/04/12 08:29 PM Re: Out of juice [Re: Charm2017]  
Joined: Jul 2007
Posts: 939
debandbill Offline
"Above & Beyond" Member (500+ posts)
debandbill  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2007
Posts: 939
Punta Gorda, Florida
Sitting here in Florida wondering how everyone is surviving without cool air. Bill and I mowed and edged this morning and as we sat outside under a tree trying to recuperate from the heat and humidity, I thought about all of you trying to operate and sleep in those hot houses.

My thoughts and prayers are with all of you and hope that power is restored soon.

Deb

Last edited by debandbill; 07/04/12 08:30 PM.

Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
#151634 - 07/05/12 06:10 PM Re: Out of juice [Re: Charm2017]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
So glad you checked in, Charm - I've been worried and wondering how everyone was managing with the heat and no electricity. Sure hope it gets restored very soon! Hope everyone's pets are able to get water and make it through the heat wave, too. A couple of weeks ago, a very small black mother cat decided to have her 2 kittens in the crawl space under my house. She must be a feral cat because she doesn't allow me to get within 3 feet of her when they come out in the early morning or late evening. So now I'm CG to 2 kittens, 1 small mother cat, my son's cat, and all the birds that visit my birdbath every day for drinks and a bath. Praying for relief and power restoration soon for everyone.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#151638 - 07/05/12 07:30 PM Re: Out of juice [Re: Anne-Marie]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
the power company brought in workers from Florida, New Hampshire, and Texas yesterday and today they have us back up with electricity. Just in time. Today's forecast is 103.
Cable back and internet. so just 6 days .
Almost freaked out when I saw I had an email from my bank that someone had tried to hack our bank accounts on Saturday but could not figure out the password in 3 times so the bank deactivated the password. While those messages are usually fake and link to a site to steal your password, I drove to the bank in person and sure enough, it was real. Luckily no money taken and I did a longer more secure password.
Ah - cool cool air.
Thanks Christine, Deb & Anne Marie for the sympathy.
Charm

Last edited by Charm2017; 07/05/12 07:32 PM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#151640 - 07/05/12 08:22 PM Re: Out of juice [Re: Charm2017]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Glad you are back online in the cool comfort of your own home!
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#151651 - 07/05/12 11:58 PM Re: Out of juice [Re: Charm2017]  
Joined: Jun 2007
Posts: 9,541
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,541
PA
So glad you have your power again, Charm!!! Miss you!!! I was worried aout you guys especially when I heard Saturday's forecast where I live is due to be 100. You are further south so it would be even worse. Horrible news about that hacker, glad they got stopped!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#151669 - 07/06/12 05:16 AM Re: Out of juice [Re: Charm2017]  
Joined: Aug 2011
Posts: 592
Kerri Offline
"Above & Beyond" Member (500+ posts)
Kerri  Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2011
Posts: 592
MA
I'm so glad to hear that you're back in business! May the juice be with you! Keep cool, my friend!


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
42 years old now...I wasn't sure I would make it! Hoping for 40 more!
#151777 - 07/08/12 10:45 AM Re: Out of juice [Re: Charm2017]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
I was on I 70 last sunday and must have passed 200 power trucks heading soemwhere East of this area. I was lucky and only lost power for a few seconds. The temps are like most. High to mid 90s and dry.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#151783 - 07/08/12 01:23 PM Re: Out of juice [Re: EzJim]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
EZ Jim

yep, they were all heading out here to help. Those workers did an amazing job in blistering heat. Today marks the 11th straight day of high temperatures over 95. It hit 105 yesterday in my neighborhood, just shy of the all time 106 record. Today it was already 87 at 6 AM . So I am grateful to those workers for restoring our electricity. Ah, how lovely the AC compressor sounds.
Keep cool my friend
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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