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#151391 06-28-2012 07:47 AM
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Don had his biopsy this morning. They said his airway was almost swollen shut. They had to put his trach tube back in And we're having to stay a few days! Has anyone experienced this?
thanks,
Callie


Callie, 24, cg to husband, Don, 43, smoker 20+ years, quit smoking 12/11! 3/09- spot on tongue, biopsy-. 3/10 biopsy-. 10/14/11 biopsy+. Surgery to remove front half of tongue and 32 lymph nodes (contained in one node).. 12/09/11. 6 weeks rad tx 2/1/12-3/20/12. Trach removed 4/12. Still using peg.
dcferree #151403 06-28-2012 12:49 PM
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Wow... no... sounds like a reaction to something. Good luck... someone else may have input... take care.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
dcferree #151418 06-28-2012 07:01 PM
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How is he tonight? What a wierd thing. Keep us posted!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
dcferree #151420 06-28-2012 07:28 PM
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Just very tired. We all were very shocked. The doctors said they couldn't even see his vocal cords. still don't have any answers. Waiting on biopsy results and CT results from today. We're at UAB hospital. He looks like he feels miserable.


Callie, 24, cg to husband, Don, 43, smoker 20+ years, quit smoking 12/11! 3/09- spot on tongue, biopsy-. 3/10 biopsy-. 10/14/11 biopsy+. Surgery to remove front half of tongue and 32 lymph nodes (contained in one node).. 12/09/11. 6 weeks rad tx 2/1/12-3/20/12. Trach removed 4/12. Still using peg.
dcferree #151421 06-28-2012 08:10 PM
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It sounds miserable for you both. Thoughts and prayers with you, Callie.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
dcferree #151424 06-28-2012 08:36 PM
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Thank you very much!!! It feels like we're back at step one !


Callie, 24, cg to husband, Don, 43, smoker 20+ years, quit smoking 12/11! 3/09- spot on tongue, biopsy-. 3/10 biopsy-. 10/14/11 biopsy+. Surgery to remove front half of tongue and 32 lymph nodes (contained in one node).. 12/09/11. 6 weeks rad tx 2/1/12-3/20/12. Trach removed 4/12. Still using peg.
dcferree #151466 06-30-2012 07:29 PM
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Hi Callie,
It's been a few days. How are things?
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
dcferree #151476 07-01-2012 05:50 AM
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Still in hospital. Has to be suctioned out a lot doesn't have the strength to cough anything up. He's been having hot flashes, so the temp is set on 60 and I have three blankets. Lol. One side of his jaw is severely swollen. The doc said it's from radiation, but it didn't even look like that until after the biopsy, so I'm not sure about that. It's a little scary I pray it's only from the biopsy. Still don't have results from biopsy, but full body CT came back negative! Praise God for that!! We should have biopsy by Tuesday. Still no answers for his throat swelling. Doctor said he started struggling to breath towards end of biopsy. Kind of makes me think he had some sort of reaction to the anesthesia, but I'm not a doctor, so we'll see what they come up with.

Callie


Callie, 24, cg to husband, Don, 43, smoker 20+ years, quit smoking 12/11! 3/09- spot on tongue, biopsy-. 3/10 biopsy-. 10/14/11 biopsy+. Surgery to remove front half of tongue and 32 lymph nodes (contained in one node).. 12/09/11. 6 weeks rad tx 2/1/12-3/20/12. Trach removed 4/12. Still using peg.
dcferree #151479 07-01-2012 07:40 AM
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"OCF Canuck"
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Hi there. It very much sounds like an allergic reaction! the throat swelling, the jaw part sounds like an infection which is very possible - any time you cut into the skin you open yourself up to infection - radiated skin takes a lot longer to heal particularly if radiation was fairly recent, and because if this there is more chance of infection as well. Also the hot and cold flashes are another indication of infection (unless he's having a problem with any meds) do ask about the possibility of a localized infection. Hugs and tell him to get well soon! Oh and the ct sounds great! Hope it's indicative of the biopsy results....


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
dcferree #151485 07-01-2012 01:19 PM
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Another doctor came in and said that Don's throat was pretty tight before they put him under, and by the end of surgery they had to put the trach in because it was almost all the way closed up. Which means for the last 3 weeks( the last time he had a scope ran ) his airway has been slowly closing up. But for what reason ? Nothing in his diet or medicines has changed for the last 7 months!!

The jaw they said it's not infection due to the fact he's not running fevers. The doctor said if it was infected he wouldn't be able to stand someone pushing on it. She said the swelling should gradually start going down from this point on. Well we're staying another night as well. First we had troubles with our insurance company paying for a suction machine, then they only allowed us companies that wouldn't do service calls in our area. last the delivery guy didn't show up yesterday with the machine and they can't get a hold of anyone today, so tomorrow we can go home.thanks to everyone for replying to me!!


Callie, 24, cg to husband, Don, 43, smoker 20+ years, quit smoking 12/11! 3/09- spot on tongue, biopsy-. 3/10 biopsy-. 10/14/11 biopsy+. Surgery to remove front half of tongue and 32 lymph nodes (contained in one node).. 12/09/11. 6 weeks rad tx 2/1/12-3/20/12. Trach removed 4/12. Still using peg.
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