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#151309 - 06/26/12 11:30 PM blisters
plantgirl Offline
Supporting Member (50+ posts)

Registered: 11/02/10
Posts: 74
Loc: North Carolina
Ive recently moved back north to MA to be close to my family. Im waiting to get an appointment with Dana Farber Hospital hopefully this week. Im takinh Tarceva now have been on it for a month. It seemed to shrink the tumor on my neck but my former Chemo dr didnt order a scan last week so I dont know if it is working. Ive got a cluster of blisters on the tumor site. They are freaking me out. Does anyone know what is the cause of them? They are filled with fluid and break open. I called my former Dr 3 times and still havent gotten a call back.
_________________________
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16

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#151314 - 06/27/12 12:35 AM Re: blisters [Re: plantgirl]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 856
Loc: Ohio
I'm sorry that I don't know about the blisters, but I am very glad that you will be going to Dana Farber - they are a very good center.
Are you have any other issues with the Tarceva?
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#151326 - 06/27/12 02:59 AM Re: blisters [Re: plantgirl]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4762
Loc: Toronto canada
Could it be left over from the Erbitux? I would have it checked out immediately - glad you're back home. Push to get into Dana Fabre ASAP. Hugs!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#151336 - 06/27/12 10:14 AM Re: blisters [Re: plantgirl]
plantgirl Offline
Supporting Member (50+ posts)

Registered: 11/02/10
Posts: 74
Loc: North Carolina
I dontthink its from Erbitux that was too long.. it could be by thr tarceva. yeah im glad to be out of NC kinda feel like UNC got sick of me.especially my chemo dr. last appointment with her was all of 5 minutes.
_________________________
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16

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#151337 - 06/27/12 11:05 AM Re: blisters [Re: plantgirl]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4762
Loc: Toronto canada
That's negligent... The length of time. You're a cancer patient they should be willing to be able to spend a reasonable amount of time with you. Hopefully it is the chemo causing this side effect but definitely have it checked out ASAP plus the fact that the blisters are popping leaves you open to infection. Push to get in earlier rather than later. Hugs!


Edited by Cheryld (06/27/12 11:05 AM)
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#151343 - 06/27/12 03:31 PM Re: blisters [Re: plantgirl]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 856
Loc: Ohio
Remember that people cancel appointments all the time - you can call early morning and ask politely if anything has opened up.
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#151379 - 06/28/12 09:51 AM Re: blisters [Re: plantgirl]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2556
Loc: TN
That's right about how people do cancel appointments. Also they can move appointments to accommodate urgent need situations. They did it for my son when he had an appointment two weeks away and moved him up to from a Friday to the following Monday. Later there were times when the office would call me to see if my son would agree to a later appointment so someone else could get in earlier. It's always a good idea to be polite and nice to the office personnel and especially the nurses who can help you. Remembering their names is good, too so you can know who said what and refer to it.
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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