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Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
There are several types of tubes. Most members have the regular PEG type tube. A very few get the Mickey button which is able to have the patients change it after instructions. My type of tube the J/G kind never would be able to be changed by a patient.

For safety reasons it was necessary to clarify that this type of maintenance should only be due with the guidance of a physician. I would not want to read of someone getting hurt by attempting to get curious and remove their tube to see if it would go back in.

From what Charm has written (he and his wife are unfortunately an expert patient/caregiver team with this kind of thing) its a very simple procedure. Im sure you will do fine! Glad its not something that needs to be done as often as what I have to go thru. At my next appointment I am going to inquire about switching since I see how much easier it is with the Mickey button.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Christine

It's pretty much unanimous on the Blenderized diet board and the Food for Tubie forum that AMT buttons are head and shoulders above the Mic-Key brand. Here is a link to the AMT G-Jet description, it has info for both clinicians and patients so you can send it to your doctors.
AMT G/J button
Actually, it's easier to change a G button than the regular PEG tube since the buttons have to be ordered in half centimeter sizes to fit the stoma exactly. Unlike the tube, a home changer cannot put it in too far or too short, it fits automatically by just laying it on the skin.
For the majority of OCF posters, there would never be a need to change their PEG let alone get a button. My AMT button is now two weeks past the 90 day Medicare allowance and going strong. Even better, for the very first time in 3 years, I do not have that painful granulation tissue that the Mic Key's gave me and that I had to burn off with those silver nitrate sticks.
Charm

Last edited by Charm2017; 06-24-2012 06:08 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jul 2007
Posts: 939
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2007
Posts: 939
Yay Charm....one small victory in all the aggravations that you have to deal with.

So glad to hear that the new equipment is working as it should and your body is liking it as well.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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