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#151054 - 06/20/12 01:44 PM Recent news stories
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8465
Loc: PA
Great job to our own Davidcpa, Kathy and Kevin Pruyne! Thanks so much for your participation in this article. So far I havent seen it on the OCF newsfeed. Im sure it will be there very soon.

CURE magazine article HPV and OC


My local newspaper has also done a small story about me. It was very short and unfortunately they barely mentioned OCF.

LehighValleyLive's article about Christine Brader


Edited by ChristineB (06/20/12 01:46 PM)
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#151056 - 06/20/12 01:54 PM Re: Recent news stories [Re: ChristineB]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
Thanks for sharing these Christine! Love it
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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#151057 - 06/20/12 03:53 PM Re: Recent news stories [Re: ChristineB]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 873
Loc: Ohio
Being Facebook challenged, I was glad to see the smiling faces of our own dear Christine, Kathy and Kevin. But no picture of our 'lean cyclist' David - would have expected to see him on his bike.

Both articles are actually very good for their venues and intended audiences. Thanks to all who participated and to the authors for a job well done.
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#151059 - 06/20/12 06:19 PM Re: Recent news stories [Re: ChristineB]
AnitaFrances Offline
"Above & Beyond" Member (500+ posts)

Registered: 09/25/09
Posts: 691
Loc: Media, PA
_________________________
Anita (60)
CG to husband, Clark, 70,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14

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#151061 - 06/20/12 06:47 PM Re: Recent news stories [Re: AnitaFrances]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 873
Loc: Ohio
Originally Posted By: AnitaFrances
This is a GREAT article! Thank you, Christine for posting the link. It is so nice to read about Kevin, Kathy, and David, and the University of Pennsylvania's Dr. Bert O'Malley.

"Along with a physician colleague, O’Malley has developed a robotic surgery protocol called TransOral Robotic Surgery..."

The physician colleague mentioned here is Dr. Greg Weinstein, who was Clark's surgeon. I can't say enough good things about the guy.

Anita

PS How do you get the quotes to appear in a box?


To quote the entire post, select Quick Quote - the text with the quote format will appear in the Quick Reply box at the bottom of the page. This also references the member whose post you are replying to.


Edited by Maria (06/20/12 06:48 PM)
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#151063 - 06/20/12 06:58 PM Re: Recent news stories [Re: AnitaFrances]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 873
Loc: Ohio
To quote just some of the text (using a Windows computer)

1. Select (highlight) the text you wish to quote.
2. Press Ctrl+C to copy to your clipboard.
3. Click the Reply button.
4. Press Ctrl+V in the Full Reply window to paste the text you just copied.
5. Select that text, and click the " (quote) button.

Quote:
PS How do you get the quotes to appear in a box?


Someone else will have to do the Mac instructions.
While you are in the Reply screen, you can change fonts and colors. The Quick Reply box does not include the formatting buttons, although you can add the formatting codes directly (if you are of the geek persuasion).
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#151064 - 06/20/12 07:08 PM Re: Recent news stories [Re: ChristineB]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4959
Loc: Toronto canada
:o) awesome.... you all are heroes... thanks for helping spread awareness.
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#151068 - 06/20/12 09:25 PM Re: Recent news stories [Re: ChristineB]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8465
Loc: PA
Maria, if you are interested in seeing Davidcpa check out the main OCF pages. There is an "About Us" section and then its under "key staff". It has photos and bios of many OCF volunteers.

OCF's key staff bios


PS... I forgot to thank Gabe for bringing the article to my attention. She was the first one to see it and she passed it along to me. Thanks Gabe!!!!


Edited by ChristineB (06/20/12 09:26 PM)
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#151071 - 06/20/12 10:21 PM Re: Recent news stories [Re: ChristineB]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 873
Loc: Ohio
Thanks, Christine - I never meandered through that section. Still think we need a photo of the man and his bike, though.
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

Top
#151072 - 06/20/12 11:14 PM Re: Recent news stories [Re: ChristineB]
Gabe Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Registered: 08/02/07
Posts: 1290
Loc: Sydney NSW Australia
No problem Christine...
Both articles are great and do a wonderful job of bringing awareness to the general public on oral cancer, each from a different perspective.
I can relate to your story and admire your advocating for smoking prevention.
I started reading the Cure article and immediately realise I knew these people especially when Alaska was mentioned.
Then a little further down I saw our David quoted wink
I may not post as often as I used to but am certainly reading most days.
Gabriele
_________________________
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
Surgery GIST 8/2013

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