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#151054 - 06/20/12 01:44 PM Recent news stories  
Joined: Jun 2007
Posts: 9,747
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,747
PA
Great job to our own Davidcpa, Kathy and Kevin Pruyne! Thanks so much for your participation in this article. So far I havent seen it on the OCF newsfeed. Im sure it will be there very soon.

CURE magazine article HPV and OC


My local newspaper has also done a small story about me. It was very short and unfortunately they barely mentioned OCF.

LehighValleyLive's article about Christine Brader

Last edited by ChristineB; 06/20/12 01:46 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#151056 - 06/20/12 01:54 PM Re: Recent news stories [Re: ChristineB]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
Thanks for sharing these Christine! Love it


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#151057 - 06/20/12 03:53 PM Re: Recent news stories [Re: ChristineB]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Being Facebook challenged, I was glad to see the smiling faces of our own dear Christine, Kathy and Kevin. But no picture of our 'lean cyclist' David - would have expected to see him on his bike.

Both articles are actually very good for their venues and intended audiences. Thanks to all who participated and to the authors for a job well done.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#151059 - 06/20/12 06:19 PM Re: Recent news stories [Re: ChristineB]  
Joined: Sep 2009
Posts: 697
AnitaFrances Offline
"Above & Beyond" Member (500+ posts)
AnitaFrances  Offline
"Above & Beyond" Member (500+ posts)

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Posts: 697
Media, PA


Anita (63)
CG to husband, Clark, 73,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
#151061 - 06/20/12 06:47 PM Re: Recent news stories [Re: AnitaFrances]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Originally Posted By: AnitaFrances
This is a GREAT article! Thank you, Christine for posting the link. It is so nice to read about Kevin, Kathy, and David, and the University of Pennsylvania's Dr. Bert O'Malley.

"Along with a physician colleague, O’Malley has developed a robotic surgery protocol called TransOral Robotic Surgery..."

The physician colleague mentioned here is Dr. Greg Weinstein, who was Clark's surgeon. I can't say enough good things about the guy.

Anita

PS How do you get the quotes to appear in a box?


To quote the entire post, select Quick Quote - the text with the quote format will appear in the Quick Reply box at the bottom of the page. This also references the member whose post you are replying to.

Last edited by Maria; 06/20/12 06:48 PM.

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#151063 - 06/20/12 06:58 PM Re: Recent news stories [Re: AnitaFrances]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
To quote just some of the text (using a Windows computer)

1. Select (highlight) the text you wish to quote.
2. Press Ctrl+C to copy to your clipboard.
3. Click the Reply button.
4. Press Ctrl+V in the Full Reply window to paste the text you just copied.
5. Select that text, and click the " (quote) button.

Quote:
PS How do you get the quotes to appear in a box?


Someone else will have to do the Mac instructions.
While you are in the Reply screen, you can change fonts and colors. The Quick Reply box does not include the formatting buttons, although you can add the formatting codes directly (if you are of the geek persuasion).


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#151064 - 06/20/12 07:08 PM Re: Recent news stories [Re: ChristineB]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
:o) awesome.... you all are heroes... thanks for helping spread awareness.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#151068 - 06/20/12 09:25 PM Re: Recent news stories [Re: ChristineB]  
Joined: Jun 2007
Posts: 9,747
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,747
PA
Maria, if you are interested in seeing Davidcpa check out the main OCF pages. There is an "About Us" section and then its under "key staff". It has photos and bios of many OCF volunteers.

OCF's key staff bios


PS... I forgot to thank Gabe for bringing the article to my attention. She was the first one to see it and she passed it along to me. Thanks Gabe!!!!

Last edited by ChristineB; 06/20/12 09:26 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#151071 - 06/20/12 10:21 PM Re: Recent news stories [Re: ChristineB]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Thanks, Christine - I never meandered through that section. Still think we need a photo of the man and his bike, though.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#151072 - 06/20/12 11:14 PM Re: Recent news stories [Re: ChristineB]  
Joined: Aug 2007
Posts: 1,301
Gabe Offline
"OCF Down Under"
Gabe  Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Sydney NSW Australia
No problem Christine...
Both articles are great and do a wonderful job of bringing awareness to the general public on oral cancer, each from a different perspective.
I can relate to your story and admire your advocating for smoking prevention.
I started reading the Cure article and immediately realise I knew these people especially when Alaska was mentioned.
Then a little further down I saw our David quoted wink
I may not post as often as I used to but am certainly reading most days.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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