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Joined: Apr 2012
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SEANA Offline OP
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Posts: 29
going to bed sorry for going on i have my family and my family GP who are giving me great advice and i know A is not well both the worst thing he has to go through now and them how he feels with us ,i am ok and know it is not personal and know in a few weeks /months things will have moved on and not to worry and try and keep cool and lodigical and not try and reason with him now all these things i have to keep saying to myself and i have the easy part he is going through hell and has noone there for him ,I so wish it could be different,but i am ok ,i am lucky to have family a great doctor who is a family friend who knows me well and is there all the time and no financial worries ,i am very lucky and i am sorry for going on about silly things ,I know now is not the time and i must forget about rubbish and act wike omeone who is totialy focused and notdo anything that will take away from A treatment.


age 50,dx march 2012,tx start 16th may,rads 34 imrt,chemo 7,no surgery.HPV ?.stg 4 BOT plus 1 sliva gland and toncil,casual drinker,smoked 19yrs ago but had odd cig.cycles approx 10ks 5 days wk.
Joined: Oct 2011
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KP5 Offline
"Above & Beyond" Member (500+ posts)
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Joined: Oct 2011
Posts: 805
You are NOT silly and we don't mind if you go on and on. That's why we are here. You are right, he is scared to death right now and while you understand it, you also have to be careful with his temper and be sure you are safe. I'm glad your family is supporting you as well as your Dr.
Keep in touch. Hope things get better.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Apr 2012
Posts: 47
"OCF across the pond"
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Joined: Apr 2012
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Cheers it is reassuring that some one else fights with fonts and nonsense when trying to get things off their chest. I am a young 53 and they wish to fix a peg next week I am In 2nd week of Chemo holding up well. I am 5 weeks away from radiation so your info is invaluable to me thanks for the "Heads Up"
Give the old man a high five from me.
Sleep well.X

Last edited by CubanKeith; 06-18-2012 09:07 PM.

21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
Joined: Apr 2012
Posts: 47
"OCF across the pond"
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Iam in week 2 of intro to Chemo,(I holiday weekend away that I would happily missed" but all the nurses excellent at Guys In LONDON I read your post saying a peg is a tool it is important to hear that things work well at different times. Iam on the HPV route so to hear such good things about your Hubby was a real boost. Thank You.
I am working out my signature when I get the hang of the terms.


21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
Joined: Apr 2012
Posts: 47
"OCF across the pond"
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Posts: 47
I got on my Bike today for the first time in 12 months and felt great felt like I was telling that cancer to piss off and find some lazy drinking couch/sofa ( secetary required) potatoe to harass. Soory to all lazy fat coach Potatoes maybe if I chilled more I would not have got cancer.LOL

Last edited by CubanKeith; 06-18-2012 09:41 PM.

21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
Joined: Apr 2012
Posts: 47
"OCF across the pond"
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Seana I am giving my wife the best person ever for me right now some shit. Is it because I am on Steriods? Is it because I have a shitty illness? Is it because everything feels so important right now?

I am sure he feels sorry lots keep loving him and yourself.Sometime she offers help Ie: milk made you sick yesterday? Well right about now I want the biggest chocloate milk shake I can handle and I dont need reminded about yesterday. Cancer patients aint very patient with the people they love the most.
Send support through me to Ismary my Rock in this storm. LOL.


21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
Joined: Apr 2012
Posts: 47
"OCF across the pond"
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go girl go.


21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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Posts: 945
Keith wrote:

"Is it because I am on Steriods? Is it because I have a shitty illness? Is it because everything feels so important right now?"

Well, that pretty much sums it up. It's hard to remember to engage your brain before your mouth when so much is going on.

Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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