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vandypaul #150439 06-06-2012 02:00 PM
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The port!! Makes everything MUCH easier.


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
vandypaul #150884 06-14-2012 04:07 PM
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Today was sixth chemo. Last with the sticks. Had luck with the fifth but subsequent iron infusion did'nt go too well. With ten more chemos and a few blood transfusions not to mention the mthly iron we finally took everyone's advice. Monday she gets a port. Also chemo has already really shrunk the lymph node swelling as well as the cheek. Onward to radiation in 4 wks


Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
vandypaul #150903 06-15-2012 05:32 AM
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Please add a Signature Line so that readers can quickly see all the particulars. It really helps anyone that wishes to respond. See mine as an example.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
vandypaul #150908 06-15-2012 09:07 AM
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It's hard but you'll get through it.. Thinking of you... And a port is a good thing!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
vandypaul #150919 06-15-2012 12:55 PM
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Thanks for adding her details and we all wish you both positive outcomes. We will be here to help you 24/7. I wish they would make the Port a standard proceduce for OC patients getting concurrent chemo/rad. I know I could have used one.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
vandypaul #151107 06-21-2012 03:35 PM
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Today had an abrupt change in treatment plan.Seems her WBC dropped so no chemo today.Last 3 chemos cancelled and radiation/chemo starts Monday. Swelling of lymph nodes gone but cheek swelling not as much. Dr thought it best to move on. Whole new ball game. Port surgery went well and been used for blood transfusion.


Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
vandypaul #151118 06-22-2012 01:49 AM
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This is a difficult road for you both. Many people have their chemo altered due to the low WBC count. Hope all now goes well with the radiation. Many here will offer you advice as you need it.
Take care and time for yourself too.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
vandypaul #151120 06-22-2012 05:29 AM
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We are here for you so keep us posted.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
vandypaul #151655 07-05-2012 05:49 PM
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Ending we 2 of chemo/radiation. Have had a hard time convincing my lovely to water up. I think we got her attention yesterday. Typical side effects-dry mouth,no taste,fatigue. Have been to physical therapy,food guru and swallow spec. With all the rinses, pt etcher days are busy. Today marked a turn in her attitude. Started using the pain med and forcing herself to eat. Since this al started she has only lost 1 lb----110to109.She wants to know what some of you veterans found most tolerable to eat. See,progress. Thanks for all the help. Five wks to go.


Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
vandypaul #151659 07-05-2012 06:46 PM
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Here is a list of easy to eat foods. I found chocolate milk very good and also liked drinking yoo-hoo all thru my treatments. For some reason I found it to be very soothing on a sore mouth. Foods right now will be about texture, the smoother the better. Canned peaches were a favorite of mine.


Easy to Eat Foods

Great work on only losing 1 pound so far. Keep pushing the calories and nutrition. Thats what makes the difference in how easily someone gets thru this. A minimum of 48oz of water every single day is mandatory or she can face dehydration. It takes work and as time goes on things get more difficult so hang in there!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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